Australian Motor Neurone Disease Registry

The Australian Motor Neurone Disease Registry aims to improve patient care through continuous evaluation of patient management and associated outcomes, and form significant scientific research collaborations with organisations and individuals to better understanding MND.
Screen-Shot-2017-05-01-at-11-58-28-am.pngThe Australian MND Registry is a clinical database that provides a means to facilitate the collection and analysis of MND patient data such as:
  • Demographics
  • Site of onset
  • Diagnosis data
  • Treatment type
  • Changes in functional capacity
  • Complications related to disease progression
  • The impact of new treatments and interventions for MND.
 
Participating in the registry provides an opportunity for people living with MND to actively contribute to research. There are no extra tests, procedures or treatments involved.

More about the Australian MND Registry and how to get involved.
 
 

Proud member of:

International Alliance of ALS/MND Associations

ACNC Registered Charity

 

MND Australia would like to advise Aboriginal and Torres Strait Islander users that this website may contain images or names of deceased persons.