Every year the International Alliance of ALS/MND Associations
celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the globe.
Motor neurone disease (MND) is a global problem. It does not discriminate on the basis of race, ethnicity or demographic. It is a devastating disease that affects over 350,000 of the world’s population, and kills over 100,000 people every year (International Alliance of ALS/MND Associations
). For every person diagnosed with MND, the impact of the disease will be forever felt by their loved ones.
Why 21 June?
June 21 is a solstice – a turning point – and each year the ALS/MND community undertake a range of activities to express their hope that this day will be another turning point in the search for cause, treatment and cure of MND.
ALS/MND Global Day 2015 – #ALSMNDWithoutborders
During ALS/MND Global Day 2015, The International Alliance of ALS/MND Associations (Alliance) ran the promotional campaign: ALS/MND Without Borders.
ALS/MND affects people regardless of age, race, gender, nationality, ethnicity or economic status. ALS/MND has no borders … and neither should we!
During the Global Day 2015 campaign, people used the hashtag #ALSMNDWithoutBorders to spread messages of awareness, hope and collaboration.
In Australia, the annual MND NSW/MND Australia Walk to d’Feet MND was held in Canberra on Global Day. A crowd of 239 walkers and 20 dogs wound their way around the shores of Lake Burley Griffin to raise awareness and $20, 219 for MND care and research.
Singer-songwriter Megan Longhurst shared her story about her father, professional footballer, Garry Longhurst who died from MND. Megan then performed an inspiring set of songs to leave the crowd feeling hopeful and uplifted.
To close the MND Global Day campaign, on Monday 22 June MND Australia held a morning tea at Parliament House in Canberra, hosted by Alex Hawke MP, to promote MND care and research and advocate for the rights of people living with MND.
In the spirit of this year’s Global Day campaign – ALS/MND Without Borders
– members of both sides of politics joined 50 people from the MND community including those living with MND, their loved ones, peak bodies and health and community care professionals. Read more about the parliamentary morning tea
Join the fight … other ways to spread the word
Global Day is an event that knows no boundaries, so everybody can be involved. Any event (big or small), any activity, any act, can be a part of raising awareness of ALS/MND.
Some ways to spread the word:
- Host a Drink Tea for MND event – invite your friends to make a donation while they enjoy cake and a cuppa or encourage your community to hold their own Drink Tea for MND
- Wear a blue cornflower – the symbol of hope for people living with MND – and talk to people about MND
- Hold a free dress or wear blue day – encourage your local community, schools and businesses to get involved in return for a gold coin donation.
- Become a Global Day Hero. It’s free and easy to create your own online fundraising page through Everyday Hero and approach your friends, family, colleagues and contacts for tax deductible donations. Each secure donation is recorded on your page along with any messages of support from your donors. Please go to www.everydayhero.com.au or www.gofundraise.com.au
- For further information about getting involved in Global Day contact your state MND Association or check our events calendar.