Every year the International Alliance of ALS/MND Associations
marks 21 June as the global day of recognition of ALS/MND – a disease that affects over 400,000 of the world's population, and kills over 100,000 people every year.
ALS/MND Global Day 2016 – #ALSMNDWithoutborders
During ALS/MND Global Day 2016, people from all over the world advocated for the fundamental rights of people with ALS/MND.
Members of the International Alliance of ALS/MND Associations
have written a special advocacy document naming and supporting The Fundamental Rights of People with ALS/MND Worldwide
If you missed Global Day, don't worry. It's never too late to advocate for all people living with ALS/MND – read the Fundamental Rights of People with ALS/MND Worldwide and share it with your social network.
Try these social media messages:
I support the Fundamental Rights of People Living with ALS/MND. You can too! Read the International Alliance of ALS/MND Associations advocacy document and share widely. http://bit.ly/25Uj0Eq #ALSMNDWithoutBorders
It's ALS/MND Global Day! #ALSMNDWithoutBorders: United in advocating for people with ALS/MND worldwide http://bit.ly/25Uj0Eq @ALSMNDAlliance
I support the Fundamental Rights of People Living with ALS/MND. You can too! http://bit.ly/25Uj0Eq #ALSMNDWithoutBorders @ALSMNDAlliance
Call on politicians to support MND care and research
MND Australia has written a National Action Framework
including five commitments to improve the lives of people living with MND.
Contact your local parliamentarians/candidates and send them the MND Australia's National Action Framework along with your personal message about why they should support MND care and research. Share the framework via social media.
Some ideas to get you started:
Do you care about people living with MND? We seek commitment from you as Local Candidate for [insert your Federal Seat] to improve the lives of people living with MND and their families. Please support the MND Australia National Action Framework and empower people living with MND http://www.mndaust.asn.au/Documents/MND-Australia-Action-Framework.aspx
I support MND Australia’s National Action Framework and call for politicians on all sides to make five commitments on behalf of people living with MND and their families: https://www.mndaust.asn.au/Influencing-policy/Government-update.aspx #MNDaction
1. Increased investment in research
2. Development of National MND Guidelines
3. Improvements to aged and disability care
4. Timely access to a full range of assistive technology
5. A specific commitment to fund specialist MND multidisciplinary clinic coordinators
@yourLocalMember pledge your Five Commitments to people living with MND #MNDaction #auspol @mndaustralia