Global Day

Every year the International Alliance of ALS/MND Associations marks 21 June as the global day of recognition of ALS/MND – a disease that affects over 400,000 of the world's population, and kills over 100,000 people every year.
ALS/MND Global Day 2016 – #ALSMNDWithoutborders
ALS/MND Without Borders

During ALS/MND Global Day 2016, people from all over the world will advocate for the fundamental rights of people with ALS/MND.

Members of the International Alliance of ALS/MND Associations have written a special advocacy document naming and supporting The Fundamental Rights of People with ALS/MND Worldwide

Join us in advocating for all people living with ALS/MND – read the Fundamental Rights of People with ALS/MND Worldwide and share it with your social network on 21 June 2016.

Try these social media messages:

I support the Fundamental Rights of People Living with ALS/MND. You can too! Read the International Alliance of ALS/MND Associations advocacy document and share widely. http://bit.ly/25Uj0Eq #ALSMNDWithoutBorders 

It's ALS/MND Global Day! #ALSMNDWithoutBorders: United in advocating for people with ALS/MND worldwide http://bit.ly/25Uj0Eq @ALSMNDAlliance

I support the Fundamental Rights of People Living with ALS/MND. You can too! http://bit.ly/25Uj0Eq #ALSMNDWithoutBorders @ALSMNDAlliance

 

Call on politicians to support MND care and research

In the lead-up to the Federal Election on 2 July, let's keep MND on the political radar. MND Australia has written a National Action Framework including five commitments to improve the lives of people living with MND.
 
Contact your local parliamentarians/candidates and send them the MND Australia's National Action Framework ​along with your personal message about why they should support MND care and research. Share the framework via social media. 

National Action FrameworkSome ideas to get you started:

Do you care about people living with MND? We seek commitment from you as Local Candidate for [insert your Federal Seat] to improve the lives of people living with MND and their families. Please support the MND Australia  National Action Framework and empower people living with MND http://www.mndaust.asn.au/Documents/MND-Australia-Action-Framework.aspx

I support MND Australia’s National Action Framework and call for politicians on all sides to make five commitments on behalf of people living with MND and their families: https://www.mndaust.asn.au/Influencing-policy/Government-update.aspx  #MNDaction
1.    Increased investment in research
2.    Development of National MND Guidelines
3.    Improvements to aged and disability care
4.    Timely access to a full range of assistive technology
5.    A specific commitment to fund specialist MND multidisciplinary clinic coordinators

@yourLocalMember pledge your Five Commitments to people living with MND in lead-up to # Election2016 #MNDaction #auspol @mndaustralia