Are you passionate about the rights of people with motor neurone disease (MND)? There are many ways that you can speak up to defend the rights and needs of the MND community.
Current call to action – a NDIS for all
Last year the MND community joined other Australians affected by disabilities to tell parliamentarians that we need a National Disability Insurance Scheme (NDIS). Thanks to people power, parliamentarians listened and the NDIS is now a reality.
We’re now turning our attention to the 50% of people with MND who are diagnosed when they are over the pension age of 65. We are hoping that the NDIS will complement the aged care system to ensure a cohesive system that gives people with disability, older people, their families and carers the full range of supports they need when they need them.
tell parliamentarians that the NDIS should be for ALL people with disabilities – no matter how old they are!
Five rights global campaign
People living with motor neurone disease (MND) face many challenges but accessing the right care, in the right place, at the right time should not be one of them.
When you sign the petition, you’re showing that you understand and support the five rights of people living with MND. Signing the petition is an easy way to raise awareness and help empower people living with MND.
You’ll also be joining the global MND community in defending the rights of people touched by MND. It’s all about strength in numbers – the more people who sign, the louder our voice when lobbying for people living with MND. Sign now.
Make your own submission to a government inquiry
Check our Government update
page for new national inquiries that affect people living with MND or contact your state MND association
to find out about current state government inquiries.
Would you like to help with influencing?
Individuals can help to shape the policies that impact people living with MND. You can defend the rights and needs of a single person with MND; or fight to change the law, government and service provider policies and community attitude to benefit a whole group of people with MND.
Take a look at the policies and position statements supported by MND Australia
Raise awareness of MND and the needs of people with MND, their families and carers
Promote research into MND
Promote positive change to structure and policy, which will be of benefit to people with MND
Help people with MND and their family to access more resources and better care
Help professionals involved in providing services to people with MND and their families gain access to resources and funding
Help people with MND and their families to access vital support services and make services accountable ensuring there is transparency in their actions and decisions
Help people with MND and their families have control over their situation.
or your state MND association
to talk about any aspect of advocacy.