Support the MND Charter

People living with motor neurone disease (MND) face many challenges but accessing the right care, in the right place, at the right time should not be one of them.  

 

The five rights

Right care. Right place. Right care. MND Week 2014 campaign poster

 
The five rights of people living with MND
1. People with MND have the right to an early diagnosis and information
2. People with MND have the right to access quality care and treatments
3. People with MND have the right to be treated as individuals and with dignity and respect
4. People with MND have the right to maximise their quality of life
5. Carers of people with MND have the right to be valued, respected, listened to and well-supported.
 
 
 

The origin of the five rights

 
Since it was founded in 1992, the International Alliance of ALS/MND Associations has helped organisations around the world to advocate and develop services for people living with ALS/MND. In 1999, the Alliance developed the Baseline of Services for People Living with ALS/MND, which briefly details the rights of people who live with MND.   
 
During 2013 the International Alliance has collaborated with the MND Association of England, Wales and Northern Ireland (MNDA) to adopt and adapt a more comprehensive list of rights developed by MNDA for people living with ALS/MND and their carers. The International Alliance aims to encourage ALS/MND organisations from all over the world to adopt the list of rights. 
 
 
 

Why support the MND Charter

 
When you sign, you’re showing that you understand and support the five rights of people living with MND. Supporting the MND Charter is an easy way to raise awareness and help empower people living with MND.  
 
You’ll also be joining the global MND community in defending the rights of people touched by MND.  It’s all about strength in numbers – the more people who sign, the louder our voice when lobbying for people living with MND. 
 
 
 

Sign me up!

 
That’s one minute down and two to go.  Click here to register your support and share the MND Charter with your friends.  
 

Download the Right care. Right place. Right time. poster (15 MB pdf) and stick it up where you work, learn or play.

 
 
 

Other ways to support people living with MND

 
If you feel passionate about the rights of people with MND, you may also consider supporting our push for a national disability scheme that gives more than 2000 people living with MND more control, choice and access to disability support services – no matter how old they are.  More information here or follow the link after you show your support for the MND Charter.