News and media
Discover the latest news about motor neurone disease (MND) advocacy and research or visit our one-stop-shop for media, Media hub
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about how MND has impacted your life.
Rachel Rizk | 31/03/2015
We've recently uploaded the MND Australia Strategic Plan 2015 –2018 to our website. Have a read to find out about our planned endeavours over the next three years to ultimately enhance the quality of life of people living with MND.
Rachel Rizk | 22/03/2015
MND Australia works with the state MND associations to ensure that policy makers and other key decision makers understand the complex, progressive needs of people living with MND. MND Australia has made three new submissions this year to support the rights of people living with MND.
Rachel Rizk | 17/03/2015
Researchers have identified a new host of gene variants that could make people vulnerable to sporadic MND. The research is published in the journal, Scientific Reports. Dr Roger Pamphlett has prepared an easy-to-read summary. This research was supported by MNDRIA funding.
Rachel Rizk | 10/03/2015
The Allied Professionals Forum is an opportunity for health professionals to share their experiences, knowledge and strategies of caring for people with ALS/MND with their international peers. The Call for Abstracts will go out on 27 April 2015 by email, and will also be available on the International Alliance of ALS/MND Associations website. More information
Rachel Rizk | 3/03/2015
The Nina Buscombe Award
provides funds to attend training, conferences or seminars where the content can be used to help improve the quality of services, management or research for people living with MND. The Award is presented and administered by MND Victoria
. Applications close on 8 May 2015.
Rachel Rizk | 2/03/2015
Are you a health or community care professional caring for a person with MND? Do you subscribe
to the MNDcare newsletter to find out the latest information, awareness, advocacy, research and professional development news? February issue
is now online.
Rachel Rizk | 27/02/2015
The ALS Association (USA) report a gene called TBK1 that may cause more than one percent of all ALS cases has been discovered. This gene would need to be combined with other environmental and lifestyle risk factors in order to ‘tip the balance’ and cause MND. Read more
Rachel Rizk | 27/02/2015
An article about Stephen Hawking's longevity is published in the Sydney Morning Herald. It includes an audio interview with our National Executive Director, Carol Birks.
Rachel Rizk | 20/02/2015
MND Australia acknowledges the urgency to advance research to better understand MND and the desperate need for an effective treatment. We believe any drug must have been proven to be safe and to improve health outcomes of people living with MND before it is made available for widespread use.
Rachel Rizk | 9/02/2015
MNDcare – MND Australia's evidence based and best practice website for health, disability, aged and community care professionals – has a new look and is now easier to use from any location or mobile device! www.mndcare.net.au