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Discover the latest news about motor neurone disease (MND) advocacy and research or visit our one-stop-shop for media, Media hub.

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Researchers identify the TBK1 gene as a risk factor in MND

Rachel Rizk | 27/02/2015

The ALS Association (USA) report a gene called TBK1 that may cause more than one percent of all ALS cases has been discovered. This gene would need to be combined with other environmental and lifestyle risk factors in order to ‘tip the balance’ and cause MND. Read more

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Carol Birks interview on MND and Stephen Hawking's unusual and remarkable life with MND

Rachel Rizk | 27/02/2015

An article about Stephen Hawking's longevity is published in the Sydney Morning Herald. It includes an audio interview with our National Executive Director, Carol Birks.

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Development and approval of drugs to treat MND

Rachel Rizk | 20/02/2015

MND Australia acknowledges the urgency to advance research to better understand MND and the desperate need for an effective treatment.  We believe any drug must have been proven to be safe and to improve health outcomes of people living with MND before it is made available for widespread use.

MNDcare for health and care professionals – now easier to use
MNDcare for health and care professionals – now easier to use

Rachel Rizk | 9/02/2015

MNDcare – MND Australia's evidence based and best practice website for health, disability, aged and community care professionals – has a new look and is now easier to use from any location or mobile device! www.mndcare.net.au
 

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Attention researchers – 27 February closing date for MND Australia Ice Bucket Challenge Grant applications

Rachel Rizk | 9/02/2015

Applications for the MND Australia Ice Bucket Challenge Grant must be received by 5.00pm (Sydney time) on Friday 27 February 2015.  Late applications will not be considered. Good luck!
 

 

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Now hiring: Research Officer

Rachel Rizk | 4/02/2015

Do you have a degree in science? Would you like to make a difference by helping us to achieve our Mission to promote, influence and advance MND care and research to improve the lives of all Australians impacted by motor neurone disease? Read job description

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Carol Birks speaks with 2GB's Steve Price

Rachel Rizk | 18/12/2014

MND Australia's National Executive Director, Carol Birks recently spoke with 2GB's Steve Price about MND, and MND research and care. Listen to the interview.

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Professor Matthew Kiernan awarded Forbes Norris Award

Rachel Rizk | 8/12/2014

Professor Matthew Kiernan, Chairman of the MND Australia Research Committee, has been awarded the prestigious Forbes Norris Award in recognition of his major contributions as an ALS/MND clinician, educator and scientist.
 
 

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New Palliative Care and Neurological Conditions Position Statement

Rachel Rizk | 2/12/2014

Last week, Palliative Care Australia and the Neurological Alliance Australia (NAA) released a new position statement on Palliative Care and Neurological Conditions.

The main focus of adopting a palliative approach to neurological conditions is described as: " maintain dignity and increase hope through the disease process by adequately managing physical, psychological and existential suffering while assisting with decision making processes."

 

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Applications open – MND Australia Ice Bucket Challenge Grant

Rachel Rizk | 1/12/2014

The MND Australia Ice Bucket Challenge Grant acknowledges the people of Australia who responded so generously to the MND/ALS Ice Bucket Challenge in 2014. This grant will provide up to $350,000 per year for a novel three-year research project that aims to understand the causes of sporadic MND in humans and seeks to find a treatment for the disease.

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