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MND Australia newsletter – August 2015

Rachel Rizk | 25/08/2015

MND Australia's bimonthly newsletter features updates about national advocacy, information, awareness and research activities that impact the MND community. This issue we celebrate Ice Bucket Challenge 2015 and report on ALS/MND Global Day.

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"Motor Neurone Disease – Some Facts" updated

Rachel Rizk | 25/08/2015

We've updated and uploaded Motor Neurone Disease Some Facts – a leaflet with brief answers to questions people usually ask about MND.  Paper copies of this publication are available from state MND associations.

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Feedback on the National Disability Advocacy Framework Discussion Paper

Rachel Rizk | 18/08/2015

MND Australia works with the state MND associations to ensure that policy makers and other key decision makers understand the complex, progressive needs of people living with MND. MND Australia has submitted feedback on the National Disability Advocacy Framework Discussion Paper to the Australian Government Department of Social Services.

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Launch of the ALS/MND Ice Bucket Challenge 2015

Rachel Rizk | 1/08/2015

Founders of the inaugural Ice Bucket Challenge, Pete Frates and Pat Quinn have launched Ice Bucket Challenge 2015 in Boston with a reminder of why we need to continue‪#‎EveryAugustUntilACure‬. Watch the launch video.

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Applications open for MND research grants commencing in 2016

Peter Simpson-Young | 14/07/2015

The MNDRIA has announced that grant applications are open for MND research beginning next year. Researchers working in Australia in fields that are relevant to motor neurone disease (MND) are invited to apply for funding. Applications close 28 August 2015.

More grants than ever before are being offered, including:

  • Grants-in-aid
  • Cure for MND Collaboration Initiative 
  • Postdoctoral research fellowships
  • Travel grants
  • PhD top-up grant
The MNDRIA has also announced additional funds available for research grants this year made possible by the Cure for MND Foundation campaign, Big Freeze at the G. The Cure for MND Foundation and MNDRIA will work together to award $1.5 million to up to 10 new grants-in-aid and two special Cure for MND Collaboration Initiative grants to commence in 2016.

For application details and more information about these grants, please visit our Application Details page, or contact Janet Nash at research@mndaust.asn.au.

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Cure for MND Foundation and MNDRIA announce $1.5 million of additional grant funding

Peter Simpson-Young | 10/07/2015

We are very pleased and excited to announce additional funds available for research grants this year made possible by the Cure for MND Foundation. The Foundation surpassed all expectations with spectacular success in raising awareness and funds to support motor neurone disease. Their Big Freeze at the G campaign in May and June was specifically targeted at raising funds to support MND research.

Latest issue of MNDcare Newsletter
Latest issue of MNDcare Newsletter

Rachel Rizk | 7/07/2015

Health and community care professionals – the latest MNDcare newsletter is now available. Read news on research, advocacy, professional development and a clinical update – Evidence based review of gastrostomy in MND.

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Global Day 2015 morning tea at Parliament House

Rachel Rizk | 30/06/2015

To mark ALS/MND Global Day 2015, MND Australia held a morning tea at Parliament House in Canberra, hosted by Alex Hawke MP, to promote MND care and research and advocate for the rights of people living with MND.  In the spirit of this year’s Global Day campaign – ALS/MND Without Borders – members of both sides of politics joined 50 people from the MND community including those living with MND, their loved ones, peak bodies and health and community care professionals.  

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Ice Bucket Challenge provides $1.05 million to accelerate MND research

Rachel Rizk | 21/05/2015

The search for new risk genes and therapies to treat motor neurone disease (MND) is set to accelerate with the announcement of the $1.05 million MND Australia Ice Bucket Challenge Grant that will bring together clinicians and researchers from Australia’s leading MND centres.

 

“Big Freeze at the G” starts with a bang – raising over $250K for M...
“Big Freeze at the G” starts with a bang – raising over $250K for MND research

Rachel Rizk | 21/05/2015

The Cure for MND Foundation fundraising event, “Big Freeze at the G” was launched last Friday and has already raised over $250K.  AFL legend Neale Daniher, who is living with MND, made a heartfelt appeal to the public to dig deep to support researchers in their efforts to understand and take down “The Beast”, as Neale calls MND.