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Global Day 2015 morning tea at Parliament House

Rachel Rizk | 30/06/2015

To mark ALS/MND Global Day 2015, MND Australia held a morning tea at Parliament House in Canberra, hosted by Alex Hawke MP, to promote MND care and research and advocate for the rights of people living with MND.  In the spirit of this year’s Global Day campaign – ALS/MND Without Borders – members of both sides of politics joined 50 people from the MND community including those living with MND, their loved ones, peak bodies and health and community care professionals.  

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Ice Bucket Challenge provides $1.05 million to accelerate MND research

Rachel Rizk | 21/05/2015

The search for new risk genes and therapies to treat motor neurone disease (MND) is set to accelerate with the announcement of the $1.05 million MND Australia Ice Bucket Challenge Grant that will bring together clinicians and researchers from Australia’s leading MND centres.

 

“Big Freeze at the G” starts with a bang – raising over $250K for M...
“Big Freeze at the G” starts with a bang – raising over $250K for MND research

Rachel Rizk | 21/05/2015

The Cure for MND Foundation fundraising event, “Big Freeze at the G” was launched last Friday and has already raised over $250K.  AFL legend Neale Daniher, who is living with MND, made a heartfelt appeal to the public to dig deep to support researchers in their efforts to understand and take down “The Beast”, as Neale calls MND. 

 

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MND Week (3–9 May) – find out how to get involved

Rachel Rizk | 4/05/2015

Ahead of the release of the latest Aged Care Reforms on 1 July, this MND Week we are lobbying the Government to make the system fair for all people living with MND.  There is strength in numbers. Join us to advocate for a fair care system for all people living with MND: www.mndaustralia.org/MNDWeek15

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National MND campaign to raise awareness and funds for research

Rachel Rizk | 1/05/2015

During May a national campaign to raise awareness of MND and funds for the MND Research Institute of Australia will run across TV and radio stations, as well as online and in Harvey Norman stores: www.endmnd.org.au
 

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Young father with motor neurone disease face of new national campaign

Rachel Rizk | 30/04/2015

A young father who will soon be unable to speak, swallow or breathe is the face of a new national campaign to raise awareness of motor neurone disease (MND) and funds for the MND Research Institute of Australia (MNDRIA).

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MND Australia Strategic Plan 2015–2018

Rachel Rizk | 31/03/2015

We've recently uploaded the MND Australia Strategic Plan 2015 –2018 to our website. Have a read to find out about our planned endeavours over the next three years to ultimately enhance the quality of life of people living with MND.

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Three new submissions to support the rights of people living with MND

Rachel Rizk | 22/03/2015

MND Australia works with the state MND associations to ensure that policy makers and other key decision makers understand the complex, progressive needs of people living with MND. MND Australia has made three new submissions this year to support the rights of people living with MND.

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New scientific publication: Linking genetic variants to sporadic MND

Rachel Rizk | 17/03/2015

Researchers have identified a new host of gene variants that could make people vulnerable to sporadic MND.  The research is published in the journal, Scientific Reports. Dr Roger Pamphlett has prepared an  easy-to-read summary. This research was supported by MNDRIA funding.

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Allied Professionals Forum, 10 December, Orlando – heads up!

Rachel Rizk | 10/03/2015

The Allied Professionals Forum is an opportunity for health professionals to share their experiences, knowledge and strategies of caring for people with ALS/MND with their international peers.  The Call for Abstracts will go out on 27 April 2015 by email, and will also be available on the International Alliance of ALS/MND Associations website. More information