As part of MND Week each year MND Australia and the state associations undertake a national Call to Action to address issues that impact on people living with MND in Australia. Last year the MND community joined other Australians affected by disabilities to tell parliamentarians that we need a National Disability Insurance Scheme (NDIS). Thanks to people power, parliamentarians listened and the NDIS is now a reality. People in some regions will start benefiting from the scheme as early as July 2013.
This year we’re turning our attention to the 50% of people with MND who are diagnosed when they are over the pension age of 65. We are hoping that the NDIS will complement the aged care system to ensure a cohesive system that gives people with disability, older people, their families and carers the full range of supports they need when they need them.
Help us tell parliamentarians that the NDIS should be for ALL people with disabilities!
You and your family know that living with MND is hard and that getting the support you need, or simply access to services to help you out, is difficult. The NDIS will transform the way services are funded and delivered, ensuring people are entitled to support, and giving them greater choice and control. But not all people. The NDIS needs a safety net model that provides for top-up funding for people who acquire a disability when over 65 to address needs not met by aged care.
Our key message:
The NDIS needs to give all 1500 people living with MND more control, choice and access to disability support services - no matter how old they are.
How you can help make the NDIS happen for all Australians:
If you need advice about where, or to whom, you should direct your particular concerns; or if you need assistance, please contact your state MND association.