www.mndcare.net.au is a new ‘one-stop shop’ website about motor neurone disease for health and community care professionals. No matter where a professional works MNDcare provides access to latest evidence based and best practice MND symptom management and support information. The website includes state specific referral pathways to assist in identifying providers and services to meet the identified needs of patients with MND. The aim of the website is to facilitate and promote best practice coordinated, multidisciplinary MND care for all people with a diagnosis of MND in Australia.
The website is an initiative of MND Australia funded by the Australian Department of Health and Ageing. The information on the website has been developed and reviewed by a panel of MND experts and MND Association staff.
Evidence based guidelines and systematic reviews are the primary source of information on the website. These guidelines and reviews provide evidence for timely interventions and referral to improve survival and the quality of life of people living with MND.
The website provides MND specific information for professionals from the onset of symptoms through to bereavement. As a symptom or need arises MNDcare will assist the professional to:
Each web page provides a quick and easy summary of a symptom or MND related need with links to the source paper or resource. Links to related content, documents and external links provides more in-depth information as required.
The Referral Pathway is a simple tool with more than 1200 potential pathways so that Australian health professionals and community care workers can:
Research studies have shown that the health and community professionals involved in the care of a person with MND can give better care and advice when they are knowledgeable about motor neurone disease and are supported to provide a coordinated, multi and inter disciplinary team approach to care.
If you are caring for a person with MND or their carer visit www.mndcare.net.au to learn more about this uncommon disease. You can also subscribe to receive the monthly e-newsletter.
General information about MND specifically for health professionals
MND NSW coordinates bi-monthly e-bulletins providing discipline specific information/journal articles on the management of MND, general information about events, services and workshops
MND Consultancy service for health professionals
For information about palliative care services, publications, programs etc
R. G. Miller et al
P N Leigh1, S Abrahams1
Christopher J McDermott and Pamela J Shaw