In the news

• Newly released Mother and Daughter rose raising funds for MND research

May 2012

Copies of newspaper stories and overview of radio and online coverage to 17 May 2012

2GB radio - Motor Neurone Disease research receives $70k boost

Ray Hadley and Sony Music Australia Chairman CEO Denis Handlin present Professor Dominic Rowe with the donation. Professor Rowe gives an update on MND research and announces opening of new MND research unit at Macquarie University in August.

ABC 7.30 Report 22 May - Tracy Bowden interviews Dr Justin Yerbury and his family - Unwanted inheritance motivates search for a cure

Channel 10 - The Circle

Neighbours star Ashleigh Brewer joined the hosts of The Circle to share her personal story and tell people how they can get involved in MND Awareness Week.

ABC National Radio Life Matters interviews Dr Justin Yerbury, Bill Gole Postdoctoral MND Research Fellow at The University of Wollongong

Dr Justin Yerbury knows firsthand the effects of motor neurone disease. He has sadly lost several family members, including his mother and sister to the illness.

It was this that drove Justin to return to university to research and investigate the cause.

MamaMia

Naomi Cocksedge, a firefighter from Windang in NSW was born into a family with a remarkable story. A remarkable story with a devastating twist that would claim the lives of her grandmother, her mother, her sister as well as aunts, uncles and cousins.

January 2012

ABC late night news 2 January - Sophie Scott interview with Professor Garth Nicholson, Teepu Siddique and Simon Eldridge on recent MND genetic research breakthroughs. 

December 2011

ABC 7.30 Report 21 December - Tracy Bowden interviews Simon and Sheila Eldridge and Professor Dominic Rowe - High flying banker tackles deadly disease

Health Matters with Dr John D'Arcy - Macquarie Southern Cross Radio Network - Interview with Simon Eldridge and Professor Dominic Rowe

The Age and Sydney Morning Herald - Insurance scheme cuts out disabled over age 65

Australian Financial Review - Acceptance not resignation

November 2011

Australian Financial Review - A life transformed

http://afr.com/p/lifestyle/mens_health/life_transformed_sm6aXoJGInBlFhH931LjMO  

2GB radio Ray Hadley - Professor Dominic Rowe talks about the International ALS/MND Symposium 

http://www.2gb.com/index2.php?option=com_newsmanager&task=view&id=10945

ABC radio PM - Hope for genetic breakthrough in motor neurone disease

http://www.abc.net.au/pm/content/2011/s3379378.htm

October 2011

Brighton sailor starts world-record bid - Bayside Leader

http://bayside-leader.whereilive.com.au/news/story/brighton-sailor-starts-world-record-bid/

The Good Short Life - The Good Weekend Magazine

NB: This article was published on the Sydney Morning Herald and Melbourne Age Good Weekend Magazine - it was reproduced from the New York times and refers to ALS and Lou Gehrigs disease. In Australia we use the term motor neurone disease or MND http://www.nytimes.com/2011/07/10/opinion/sunday/10als.html?_r=1&pagewanted=all

June 2011

6.30 with George Negus features MND and PWD in a story about the National Disability Insurance Scheme

http://ten.com.au/630pm-with-george-negus.htm?movideo_m=115180

Friday 24 June edition of the ABC One Plus One program features climate change adviser Ross Garnaut, author Colleen McCullough and horror writer Rocky Wood. Rocky Wood is living with MND.

http://www.abc.net.au/news/abcnews24/programs/one-plus-one/

Global Day - 21 June

MND Australia Patron Judith Durham and Andre Rieu Support MND Week:

World-renowned violinist Andre Rieu, who is touring Australia and New Zealand with his Orchestra in May, has joined forces with his special guests The Seekers in supporting MND Week 2011 (I to 7 May).  Andre sends this personal message of support for this cruel, paralysing disease that claims the life of more than one Australian every day.   Andre says, “I urge everyone to embrace MND Week and I ask you to give generously in aid of care and research by making a donation to the MND Association. My heart goes out to all the families and carers involved."

Saints support MND Week:

http://www.saints.com.au/news/newsarticle/tabid/5315/newsid/112668/default.aspx

http://www.saints.com.au/video%20%20audio/tabid/8662/contentid/350118/default.aspx  

Matt Preston wears cornflower on Masterchef:

http://www.masterchef.com.au/video.htm?movideo_m=104711&movideo_p=44675

Online Stories of Incurable Optimism:

Peter Ruddock - Victoria

http://www.smh.com.au/national/melbourne-life/taking-on-a-disease-lying-down-20110503-1e6o7.html

http://maroondah-leader.whereilive.com.au/news/story/peter-ruddock-still-motoring-along/

http://progress-leader.whereilive.com.au/news/story/still-motoring-along/

http://www.theage.com.au/national/melbourne-life/taking-on-a-disease-lying-down-20110503-1e6o7.html

Matt Ratcliffe - NSW

http://www.naroomanewsonline.com.au/news/local/news/general/narooma-resident-with-motor-neurone-disease-keeps-active/2140153.aspx 

http://www.naroomanewsonline.com.au/news/local/sport/football-australian-rules/afl-narooma-auskick-gets-a-new-voice/2160280.aspx

Darryl Preston - NSW

Newcastle Herald

Janine Stoodley - WA

http://au.news.yahoo.com/thewest/a/-/wa/9300687/tough-disease-is-far-from-a-stroll-in-the-park/

Werner Hayman - Tasmania

http://www.themercury.com.au/article/2011/05/02/226931_opinion.html

Dr Peter Lawrinson and Shane York - SA

http://www.abc.net.au/local/stories/2011/04/29/3204031.htm

Margaret Morgan - Victoria

http://maroondah-leader.whereilive.com.au/news/story/ringwood-north-mum-reflects-on-son-lost-to-motor-neurone-disease/

Scott Sullivan - QWeekend 'The Long Goodbye' - Queensland

 

Melissa King - The Weekend Age - Launching Mother and Daughter Rose -Victoria

http://www.theage.com.au/lifestyle/gardening--a-special-rose-to-remember-by-20110506-1ebdq.html

Hannah Delaney tells the story of a beloved friend suffering from motor neurone disease- Sunday Telegraph Body and Soul

http://www.bodyandsoul.com.au/health+healing/news+features/my+friends+grace+in+illness+humbles+me,12329

And many more stories in local papers around the country!

Radio interviews included:

Ray Hadley 2GB Sydney - Professor Dominic Rowe and Kevin Langdon

Red Symons ABC Melbourne - Professor Dominic Rowe

The Big Backyard 3WA - Melissa King - http://www.3aw.com.au/gardeningblog 

Michael Veitch ABC Hobart - Carol Birks, MND Australia, and Matt Ratcliffe

ABC local radio - Graham Opie, MND NSW, and Matt Ratcliffe

Thank you to everyone who has got involved in this years media campaign!

MND Week and Global Day 2010

JMM Communications have provided MND Australia with a list of media coverage during MND Week and Global Day

Summary of media response

MND Week

• Judith Durham interview with Lawrence Money for The Age (Melbourne), 22 April Herald Sun Weekend 1 May, and five ABC radio interviews
• Peter Ruddock – pictorial Herald Sun, article in Take 5 magazine, plus Melbourne suburban  papers  (Total circulation: 378,268)
• 14 radio interviews (3 VIC, 1 SA, 4 WA, 4  NSW and 1 TAS)
• Local metropolitan and regional print media stories across the country (VIC, NSW, SA, QLD, WA, TAS)
• 27% increase in print media exposure over previous year

The extensive print media coverage generated this year, resulted in a combined exposure (in terms of accumulated circulation figures) in excess of 6,770,946 people up from 4,910,805 last year. This does not include the exposure generated through radio interviews.  

Global Day

Media coverage resulted in a combined exposure (in terms of accumulated circulation figures) in excess of 342,680 people, compared with a similar figure of 339, 365 people last year. 

Prevention Magagazine online - Meet two amazing women affected by motor nerone disease  

 

ABC Television 1/3/10

MND Australia patron Judith Durham talked about her childhood, her years with The Seekers and the group's reunion, her life with husband Ron Edgeworth, her role as patron of the Motor Neurone Disease Association, her health and diet and her work as a composer on ABC TV's ‘Talking Heads' program in March.

You can view the episode online by visiting http://www.abc.net.au/tv/talkingheads/video/.

 

2GB radio 1/9/09

Ray Hadley 2GB talked to Peter Fuller about living with MND

 

MND Week and Global Day 2009

JMM Communications have provided MND Australia with a list of the media coverage during MND Week and Global Day. Click here to view.

Links to some of the major stories

Australian researchers say they're one step closer to unravelling motor neuron disease, and a new way to treat it. To view the ABC news story on research being conducted at the Prince of Wales Medical Research Institute click here.

More information on the clinical trial mentioned visit the Research - In Australia page

May edition of New Idea article on a young mother who is living with MND

Link Magazine

 

In addition to media coverage the Professor Stephen Hawking community service announcement (CSA) was shown on a number of channels during MND Week and up to Global Day. Channel 10 Melbourne ran the CSA for 6 weeks from 1 July 2009.

In 2008

7/5/08

ABC Health & Wellbeing have published a new fact file on motor neurone disease, to coincide with MND Week 2008.

http://www.abc.net.au/health/library/stories/2008/05/06/2236692.htm

 

4/5/08

ABC Radio interview

Motor Neurone Disease Australia president Ralph Warren says more money is needed to help people with the illness live a better life.

http://abcscience.net.au/news/stories/2008/05/04/2234777.htm

 

26/4/08

The Weekend Australian Health section reports on the recent TDP-43 discovery, MND research and the care people with MND need to help them live better for longer.

http://www.theaustralian.news.com.au/story/0,25197,23593855-23289,00.html

 

3/3/08

Sky news report on TDP-43 discovery

8/11/04

ABC Radio

The Health Report presents personal stories of three people living with Motor Neurone Disease.