If you or someone in your family has recently been diagnosed with MND it is likely that you are experiencing many confusing and confronting emotions. Good quality information and support from people who understand MND and its impact are vital at this time. Whilst motor neurone disease may have a relatively low public profile, the MND community is extensive, committed and immensely supportive.
We recommend that you contact the MND Association in your State in the first instance for support and information based on your needs. Some states host information sessions for people recently diagnosed with MND and their family and friends. State MND associations can also help to put you in touch with local health professionals and community care providers who will assist you to live as independently as possible.
Whilst your state MND Association provides support, advice and equipment, the national organisation MND Australia publishes education resources that may help answer your questions during this challenging time. You can download fact sheets about the disease, information packs for parents and practical information about living with MND. The ‘Some Facts’ brochure may be useful to give your friends and family when you tell them about your diagnosis.
MND multidisciplinary clinics are established in most capital cities. Contact your State MND Association if you would like more information about MND clinics near you.