Just been diagnosed

• For parents
• For children
• For teens
• For young friends
• For schools
• For health professionals

If you or a member of your family or a friend has been recently diagnosed with MND it is likely that you are experiencing many confusing and confronting emotions. Good quality and relevant information and support from people who understand MND and its impact are vital at this time.

The national resources Some Facts and More Facts available on this website will help answer some of your questions and may be useful to give to your friends and family when you tell them about your diagnosis.

The MND Association in your State will be able to offer you support and information based on your needs. Some states hold information sessions for people recently diagnosed with MND and their family and friends.

State MND associations can also help to put you in touch with local health professionals and community care providers who will assist you to live as independently as possible.

There are MND multidisciplinary clinics in most capital cities and your State MND Association will be able to provide further information on location and referral.  

For parents, a new resource ‘Talking with Young People about MND' can also be helpful. This Information Pack includes a booklet specially for parents about how to keep communication strong with your children. There are also booklets for 8 to 12 year olds, teenagers, young friends, schools and the health professionals who may be working with your family. Ask your local MND association for a copy of the Pack or download the booklets from this site.