MND Week

MND Week 2010

2-8 May

MND Week is celebrated nationally in the first full week of May each year. During the week MND Associations work together to raise awareness of MND to realise our vision of a world free from the impact of MND. It is also a time to acknowledge the MND community, especially people living with MND, and to remember those who have died.

During MND Week 2010 we will be supporting the National Disability Insurance Scheme (NDIS)campaign. We will be calling on all members around Australia to get active in telling their community and governments about how such a scheme would help them to live better with MND. A Call to Action letter template will be available for download soon. You will be able to get involved in this campaign by using the template to write to, or email, your government representatives to tell them about your needs. You might also like to seek a meeting with them to tell them about the impact of MND on you and your family.

We are working with JMM Communications again this year to secure media interest in MND Week and Global Day 2010 nationally and we are seeking people who would be interested in telling their story to the media. Our objective is to help educate the media, governments and the wider public about the impact of MND on people's lives. If you are interested in being involved with MND Week please take a few moments to register as a media contact.

Click herefor an overview of media stories published and radio interviews conducted during MND Week and Global Day 2009.

You might like to get involved in talking about MND to your local media or community groups - the Background Information Fact Sheet will assist you with facts and figures about MND. The Fact Sheet and other information to assist with media interviews can be downloaded on the Media Kit page of this website.

For further ideas on how to get involved click here or visit the upcoming eventspage to find out what is happening in your state or territory during the week.

Blue cornflowers, information, merchandise and posters can be obtained from State MND Associations. You can download the 2009 MND poster by clicking here.

The blue cornflower

The blue cornflower was adopted by MND Australia as the national symbol of hope for MND because of its fragile appearance but hardy nature. Like the cornflower, people living with MND show remarkable strength in coping with a devastating disease. It was first adopted by the ALS Society of Canada and is also used by South Africa and New Zealand

 

 

 

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