National information
There are a number of national resources available to assist people living with MND and the health and medical professionals who look after them. Most of these are available for download by clicking on the links below.
MND - some facts provides an introductory overview of MND and is a valuable resource for people recently diagnosed. It is also suitable to give to familily and friends of people living with MND and interested general public.
MND - more facts is aimed at people living with MND to provide them with further information about the disease.
MND - a problem solving approach is a clinical guide for health and medical professionals and is recommended for GPs and the primary health-care team who are supporting people living with MND and their families.
Aspects of Care is a booklet for residential aged care staff to assist them to meet the needs of residents living with MND and is available from each State MND Association.
The ‘Talking with Young People about MND' information pack is designed for parents to assist them to talk about MND with their children. The pack includes the following booklets for:
- parents about how to keep communication with their children strong
- 8 to 12 year olds
- teenagers
- young friends
- schools
- health professionals who may be working with the family.
The MND Australia ‘Living Better for Longer' evidence based fact sheet series explores interventions that research has shown to help people live better for longer with motor neurone disease. The following fact sheets from this series are now available for download:
MND evidence‐based interventions ‐ an overview (EB1)
Multidisciplinary care team (EB3)
Breathing and motor neurone disease: an introduction (EB5)
Breathing and motor neurone disease: what you can do (EB6)
Breathing and motor neurone disease: medications and non‐invasive ventilation (EB7)
Considering gastrostomy ‐ PEG and RIG (EB8)
Hard copies of all the resources above are available from your State MND Association.
The Glass Half Full:Living with motor neurone disease (MND) documentary film is a Rick Searle production in association with Karuna Hospice Services and MND Australia. The DVD is available from Mandela Books and their order form is available here. MND Australia welcomes your feedback on this film - please download the evaluation form and email to info@mndaust.asn.au
