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Global Day acknowledged at Parliament House, Canberra on Monday 21 June
June 24, 2010
MND Australia board directors, staff and volunteers at Parliament House, Canberra

Politicians wore cornflowers during question time and Senator Guy Barnett hosted a Parliamentary Afternoon Tea to mark Global Day in Australia on Monday 21 June. Over 50 people attended the afternoon tea and following a very warm welcoming address from Senator Guy Barnett MND Australia gave presentations on Advances in Care and Research in Australia and introduced a new website for health and community care professionals - more details coming soon! Dr Sue O'Reilly gave a personal perspective of living with MND and president Ralph Warren gave the vote of thanks.

Senator Guy Barnett moved a motion in the Senate which was duly passed the next day:

HEALTH-MOTOR NEURONE DISEASE GLOBAL DAY

Senator Barnett, pursuant to notice of motion not objected to as a formal motion, moved general business notice of motion no. 829-That the Senate-

 (a) notes that:

  (i) motor neurone disease (MND) Global Day on 21 June 2010 represents an important opportunity to acknowledge those around the world affected by MND,

  (ii) in Australia alone, more than 1 400 people have MND and the disease takes the life of more than 10 Australians every week,

  (iii) there is no known cause in 90 per cent of cases, no cure and no effective treatment for MND, and

  (iv) the most pressing need for those affected by MND and their families includes easy and timely access to appropriate care and support, including access to aids, equipment and assistance with basic daily living such as mobility, communication, feeding and breathing to maintain independence and quality of life; and

 (b) calls on the Government to continue its funding for MND research and improving health and disability services for all those affected.

Question put and passed.

 
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