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The needs of people living with rapidly progressive neurological diseases, such as motor neurone disease (MND), cannot be met by existing or traditional aged care services or facilities.
The introduction of a national disability insurance scheme (NDIS) has the potential to transform the lives of people living with MND who are diagnosed when aged 64 or younger. However it has been proposed that the needs of those people who acquire a disability after pension age would be best met by the aged care system.
The crucial issue is then how do people acquiring a disability over age 64 (pension age) access services based on need. MND Australia is working hard to ensure access to needs based care for all people diagnosed with MND no matter what age they are when diagnosed. In all NDIS and Aged Care submissions and discussions we will continue to highlight this issue.
Read the MND Australia Position Statement on Aged Care here
Read MND Australia submission to the National Disability Insurance Scheme Bill 2012 - submission 443 - and see what MND Australia has to say.
NDIS POSITION STATEMENT
The introduction of a national disability insurance scheme (NDIS) has the potential to transform the lives of people living with motor neurone disease (MND). The proposed NDIS will go a long way in providing an appropriate support structure for people in need of urgent and complex support services following a diagnosis with a rapidly progressive neurodegenerative disease such as MND.
The proposed NDIS recognises the need for:
The crucial issue that must be addressed is eligibility and access to services based on need not age. It has been proposed by the Productivity Commission in their Disability Care and Support Inquiry Report dated 31 July 2011 that the needs of those people who acquire a disabiligy after the pension age would be best met by the aged care system. This is not the case. The needs of people living with rapidly progressive neurological diseases such as MND cannot be met by existing or traditional aged care services or facilities.
MND is not a disease related to ageing but many people are diagnosed when they are over the pension age. People diagnosed with MND aged over the pension age will need services from both disability and aged care systems to address changing and complex needs related to their disability and age to ensure their quality of life. A person diagnosed with MND aged 66 must be able to access the same level of service as those diagnosed aged 64 no matter which system funds the services. A rapid response to service provision from a range of services based on the needs of the individual not their age is imperative.
About 40% of people living with MND in Australia and currently registered with a MND Association were diagnosed when they were aged 65 or older.
MND Australia believes:
MND Australia calls for:
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