Influencing policy

As the national voice of people with motor neurone disease (MND), MND Australia works with our members on shaping policy to champion the rights and needs of people impacted by MND.

2050 people have signed for five rights petition   Telling policy makers that people living with MND must have the right care, in the right place, at the right time


 

Why sign the five rights petition?

All people living with MND are entitled to these five basic rights so that they can achieve quality of life, and dignity in living and dying.  
 

Quote from Chris

Related links

Nerve cell derived from pluripotent cell

MND Australia believes trusted information about current research, and alternative and unproven treatments is vital to assist people to make informed decisions.

In response to growing publicity about stem cell treatments , we have updated our position statement on Alternative and Unproven Therapies. 

 

Carol Birks, Graham Opie and Rod Harris

CEOs and staff from state MND associations are in close contact with National Disability Insurance Scheme (NDIS) staff at launch sites. Feedback from the state MND associations assists MND Australia in responding nationally. We are focused on ensuring that people with MND entering the NDIS receive adequate, timely and well-coordinated care that can respond to rapid change. 

Mitch Fifield signing the five rights peitition

Senator The Hon Mitch Fifield (pic), Senator Sue Boyce, Alex Hawke MP, John Alexander MP, The Hon Catherine King MP and Gai Brodtmann MP have shown their support for people living with MND by signing the five rights petition.

The petition is a powerful advocacy tool to defend the rights of all Australians living with MND.

 

Proud member of:

International Alliance of ALS/MND Associations

ACNC Registered Charity

 

MND Australia would like to advise Aboriginal and Torres Strait Islander users that this website may contain images or names of deceased persons.