Scientific Advisory Council (SAC)

MND Australia is a member of the International Alliance of ALS/MND Associations. The aim of the Alliance is to provide an international community for individual ALS/MND Associations and to improve care and support for people living with MND around the world through curation and creation of information for members. The Alliance also acts as a global gateway through which Alliance Members, PALS and CALS, internal, and external stakeholders connect.
 
One of the resources of the International Alliance is the Scientific Advisory Council (SAC). The role of the International Alliance of ALS/MND Associations’ Scientific Advisory Council is to be a centralized resource to review and provide global perspective on scientific and biomedical announcements, information and opportunities relating to ALS/MND.

Dr Gethin Thomas, the Executive Director, Research for MND Australia is a member of the Scientific Advisory Council

A key resource produced by the SAC is a series of “Briefing Notes ” that provide background and updates on important advances and issues related to MND research. These have been written and approved by the SAC members and provide sound advice around the various topics.

On this page you will find the current briefing notes produced by the Alliance SAC. We hope you find these informative and useful.The links below are for downloadable PDF documents that were released in July of 2020. 

1. Alliance Briefing Note: Biogen Tofersen
2. Alliance Briefing Note: CMD CuATSM
3. Alliance Briefing Note: Cytokinetics Reldasemtiv 
4. Alliance Briefing Note: Off Label Unproven Treatments
5. Alliance Briefing Note: Right to Try
6. Updated Briefing Note: BrainStorm NurOwn





 
 

Proud member of:

International Alliance of ALS/MND Associations

ACNC Registered Charity

 

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