SWSLHD Communication and Assistive Technology trial

What is this study?

Researchers within the Sydney South West Local Health District (SWSLHD) are collaborating with The University of Sydney and The University of Technology, Sydney to recruit volunteers to participate in a research project for people living with motor neurone disease. The project will examine the use of Augmentative and Alternative Communication (AAC), such as electronic tablets, switches or eye gaze, in improving the quality of life for people living with MND and their carers. The use of Environmental Control Units (ECU) to control technology such as television and air conditioning will also be examined.
The aim of this project is to identify whether assessment and intervention within the Communication and Assistive Technology clinic within 12 months of MND diagnosis improves quality of life and function, and decreases carer burden.
 
What is involved?

To be involved in this study you need to have a definitive diagnosis of MND, with diagnosis within 12 months of the baseline assessment. Participants must be aged over 18, reside in the South Western Sydney Local Health District and be able to communicate in English. Participation involves completion of surveys at the beginning and end of your involvement with the study, a trial period of suitable adaptive technology and a 30 minute interview at the completion of the trial. There are no costs associated with this study. Participation is voluntary and you can withdraw from the study at any time.
 
Contact details

Alicia Gibb, Manasi Thornley or Monique Signorelli
South Western Sydney Local Health District Communication and Assistive Technology Clinic, Liverpool Hospital

02 8738 4701 or 02 8738 4702
swslhd-catcinic@health.nsw.gov.au
 

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