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MND death statistics

The following table shows the Australian mortality rates for MND as the underlying cause of death. See below for mortality rates for MND as associated cause of death.

Information about these statistics

Data up to and including 2005 are from the Australian Institute of Health and Welfare (AIHW) 2006. GRIM (General Record of Incidence of Mortality) Books. AIHW: Canberra.

Data from 2006–2019 are from the Analysis of Australian Institute of Health and Welfare National Mortality Database.

Data from 1979–1996 are adjusted to ICD10 standards using *comparability factor 1.13.

Note: The mortality data in the AIHW National Mortality Database were provided by the Registries of Births, Deaths and Marriages, the Australian Bureau of Statistics (ABS) and the National Coroners Information System.

AIHW and ABS data are available only for deaths.

Year	Sex	Mortality	Mean Age at Death (years)	Age-standardised death rate per 100,000	Percent all causes of death
Year	Sex	Mortality	Mean Age at Death (years)	Age-standardised death rate per 100,000	Percent all causes of death
2019	Male	443	69.0	3.10	0.51%
	Female	341	70.9	2.13	0.43%
	Combined	784	69.9	2.58	0.47%
2018	Male	394	69.5	2.84	0.47%
	Female	303	69.8	1.95	0.40%
	Combined	697	69.6	2.34	0.44%
2017	Male	359	69.3	2.62	0.43%
	Female	298	70.4	1.94	0.38%
	Combined	657	69.8	2.25	0.41%
2016	Male	395	69.2	2.98	0.48%
	Female	322	71.2	2.16	0.42%
	Combined	717	70.1	2.55	0.45%
2015	Male	389	69.6	3.05	0.48%
	Female	300	71.0	2.07	0.39%
	Combined	689	70.2	2.52	0.43%
2014	Male	340	69.1	2.71	0.43%
	Female	260	71.9	1.84	0.35%
	Combined	600	70.3	2.25	0.39%
2013	Male	389	69.6	3.24	0.51%
	Female	322	71.6	2.31	0.45%
	Combined	711	70.5	2.74	0.48%
2012	Male	390	70.4	3.3	0.52%
	Female	288	71.8	2.13	0.40%
	Combined	678	71	2.66	0.46%
2011	Male	391	69	3.45	0.52%
	Female	286	71.9	2.14	0.40%
	Combined	677	70.2	2.74	0.46%
2010	Male	366	69	3.27	0.50%
	Female	282	70.7	2.21	0.40%
	Combined	648	69.7	2.69	0.45%
2009	Male	365	68.3	3.31	0.50%
	Female	232	72.5	1.84	0.34%
	Combined	597	69.9	2.54	0.42%
2008	Male	343	68.8	3.21	0.47%
	Female	268	71.2	2.19	0.38%
	Combined	611	69.9	2.66	0.42%
2007	Male	341	68.8	3.31	0.48%
	Female	254	72.1	2.1	0.38%
	Combined	595	70.2	2.66	0.43%
2006	Male	294	69.5	2.94	0.43%
	Female	239	71.7	2.05	0.37%
	Combined	533	70.5	2.46	0.40%
2005	Male	273	70.1	2.8	0.41%
	Female	226	71.2	1.94	0.36%
	Combined	499	70.6	2.31	0.38%
2004	Male	273	68.5	2.88	0.40%
	Female	234	71.1	2.1	0.36%
	Combined	507	69.7	2.44	0.38%
2003	Male	275	67.9	2.92	0.40%
	Female	255	70.8	2.3	0.40%
	Combined	530	69.3	2.6	0.40%
2002	Male	294	69.7	3.25	0.43%
	Female	207	70.5	1.92	0.32%
	Combined	501	70	2.51	0.37%
2001	Male	280	69.4	3.26	0.42%
	Female	191	71	1.8	0.31%
	Combined	471	70	2.43	0.37%
2000	Male	253	69.2	3.06	0.38%
	Female	204	72.8	1.95	0.33%
	Combined	457	70.8	2.43	0.36%
1999	Male	251	68.7	3.04	0.37%
	Female	184	70.4	1.83	0.30%
	Combined	435	69.4	2.35	0.34%
1998	Male	231	69.1	2.92	0.34%
	Female	200	72.1	2.02	0.33%
	Combined	431	70.5	2.42	0.34%
1997	Male	175	67.3	2.23	0.26%
	Female	192	69.9	2	0.31%
	Combined	367	68.7	2.09	0.28%
1996	Male	238	68.3	3.2	0.35%
	Female	147	70.8	1.56	0.24%
	Combined	385	69.2	2.26	0.30%
1995	Male	236	67	3.15	0.36%
	Female	184	70.7	2.01	0.31%
	Combined	420	68.6	2.52	0.34%
1994	Male	231	67.5	3.2	0.34%
	Female	171	70.8	1.89	0.29%
	Combined	401	68.9	2.46	0.32%
1993	Male	216	68.6	3	0.33%
	Female	163	70.3	1.85	0.29%
	Combined	379	69.4	2.34	0.31%
1992	Male	199	67.9	2.94	0.30%
	Female	168	72.3	1.94	0.29%
	Combined	367	69.9	2.38	0.30%
1991	Male	170	68.3	2.58	0.26%
	Female	149	69.1	1.75	0.27%
	Combined	319	68.7	2.07	0.27%
1990	Male	207	67	3.05	0.32%
	Female	137	68	1.68	0.25%
	Combined	344	67.4	2.28	0.29%
1989	Male	194	66.6	3.09	0.29%
	Female	168	69.1	2.1	0.29%
	Combined	362	67.7	2.51	0.29%
1988	Male	201	67.6	3.24	0.31%
	Female	124	67	1.59	0.23%
	Combined	325	67.4	2.29	0.27%
1987	Male	154	66.8	2.48	0.24%
	Female	151	67.7	1.94	0.28%
	Combined	305	67.3	2.15	0.26%
1986	Male	134	66.2	2.25	0.22%
	Female	134	69.9	1.76	0.25%
	Combined	269	68	1.96	0.23%
1985	Male	174	64.4	2.86	0.27%
	Female	131	69.4	1.77	0.24%
	Combined	305	66.6	2.26	0.26%
1984	Male	132	64.5	2.28	0.22%
	Female	106	68	1.51	0.21%
	Combined	238	66.1	1.85	0.22%
1983	Male	137	65.1	2.39	0.23%
	Female	114	68.6	1.59	0.23%
	Combined	251	66.7	1.94	0.23%
1982	Male	131	64.9	2.38	0.21%
	Female	129	68.3	1.85	0.25%
	Combined	260	66.6	2.07	0.23%
1981	Male	122	63.8	2.21	0.20%
	Female	104	69	1.55	0.22%
	Combined	226	66.2	1.86	0.21%
1980	Male	144	66	2.72	0.24%
	Female	99	65.7	1.49	0.21%
	Combined	243	65.9	2.01	0.22%
1979	Male	121	66.2	2.32	0.20%
	Female	80	66.2	1.24	0.17%
	Combined	201	66.2	1.7	0.19%

MND as an associated cause of death

The following table shows the Australian mortality rates for MND as the associated cause of death and the total number of deaths of people with MND. Associated causes are defined by the AIHW as other diseases or conditions that contributed to the death but which were not recorded as the underlying cause.

Data on underlying causes of death up to and including 2005 are from the Australian Institute of Health and Welfare (AIHW) 2006. GRIM (General Record of Incidence of Mortality) Books. AIHW: Canberra.

Data on underlying causes of death from 2006–2018 are from the Analysis of Australian Institute of Health and Welfare National Mortality Database.

All data on associated causes of death are from the Analysis of Australian Institute of Health and Welfare National Mortality Database.

Note: The mortality data in the AIHW National Mortality Database were provided by the Registries of Births, Deaths and Marriages, the Australian Bureau of Statistics (ABS) and the National Coroners Information System.

	Deaths with MND as underlying cause	Deaths with MND as associated cause	Total deaths of all people with MND*	Percent of all causes of death with MND as either underlying or associated cause
2019	784	78	862	0.52%
2018	697	63	760	0.47%
2017	657	77	734	0.45%
2016	717	74	790	0.50%
2015	689	71	760	0.48%
2014	600	80	680	0.44%
2013	711	76	787	0.53%
2012	678	117	795	0.54%
2011	677	113	790	0.54%
2010	648	113	761	0.53%
2009	599	138	737	0.52%
2008	611	129	740	0.51%
2007	595	110	705	0.51%
2006	533	130	663	0.50%
2005	449	110	609	0.52%
2004	507	116	623	0.47%
2003	530	115	645	0.49%
2002	501	108	609	0.45%
2001	471	121	592	0.47%

*All MND deaths is the sum of deaths listed with MND as an underlying cause or as an associated cause.

Prevalence of MND in Australia
To annually update the prevalence and number of Australians living with MND is diffcult. MND is not a notifiable disease so the numbers of those living with MND in Australia are estimates only.

In 2015, a Deloitte Access Economics report, commissioned by MND Australia, estimated there were 2,094 Australians living with MND. Sixty per cent of those were male and 40 per cent female. The highest prevalence rate was reported in males aged between 75 and 84. The prevalence was estimated to be 8.7 per 100,000 Australians, or 1 in 11,434 Australians.

If the Deloitte figure of 8.7 per 100,000 Australians is applied to 2018 preliminary population figures, we can estimate that there are currently 2,174 Australians living with MND.

On 30 June 2019, the state MND associations were supporting 1,562 people living with MND across Australia.

Economic analysis of Motor Neurone Disease in Australia. Deloitte Access Economics

tags:

*Comparability factor
Incidence is the number of new cases of MND each year.
Prevalence is the number of people who are living with MND.

MND death statistics

Information about these statistics

MND as an associated cause of death

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