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MND death statistics

The following table shows the  Australian mortality rates for MND as the underlying cause of death. See below for mortality rates for MND as associated cause of death.

Information about these statistics

Data up to and including 2005 are from the Australian Institute of Health and Welfare (AIHW) 2006. GRIM (General Record of Incidence of Mortality) Books. AIHW: Canberra.

Data from 2006–2018 are from the Analysis of Australian Institute of Health and Welfare National Mortality Database.

Data from 1979–1996 are adjusted to ICD10 standards using *comparability factor 1.13.

Note: The mortality data in the AIHW National Mortality Database were provided by the Registries of Births, Deaths and Marriages, the Australian Bureau of Statistics (ABS) and the National Coroners Information System.

AIHW and ABS data are available only for deaths. 

Year Sex Mortality Mean Age at Death (years) Age-standardised death rate per 100,000 Percent all causes of death
2018 Male 390 69.5 2.8 0.47%
Female 302 69.8 1.94 0.40%
Combined 692 69.7 2.34 0.44%
2017 Male 358 69.3 2.62 0.43%
Female 298 70.4 1.94 0.38%
Combined 656 69.8 2.25 0.41%
2016 Male 395 69.2 2.98 0.48%
Female 322 71.2 2.16 0.42%
Combined 717 70.1 2.55 0.45%
2015 Male 388 69.6 3.05 0.48%
Female 300 71 2.07 0.39%
Combined 688 70.2 2.52 0.43%
2014 Male 340 69.1 2.71 0.43%
Female 260 71.9 1.84 0.35%
Combined 600 70.3 2.25 0.39%
2013 Male 389 69.6 3.24 0.51%
Female 322 71.6 2.31 0.45%
Combined 711 70.5 2.74 0.48%
2012 Male 390 70.4 3.3 0.52%
Female 288 71.8 2.13 0.40%
Combined 678 71 2.66 0.46%
2011 Male 391 69 3.45 0.52%
Female 286 71.9 2.14 0.40%
Combined 677 70.2 2.74 0.46%
2010 Male 366 69 3.27 0.50%
Female 282 70.7 2.21 0.40%
Combined 648 69.7 2.69 0.45%
2009 Male 365 68.3 3.31 0.50%
Female 232 72.5 1.84 0.34%
Combined 597 69.9 2.54 0.42%
2008 Male 343 68.8 3.21 0.47%
Female 268 71.2 2.19 0.38%
Combined 611 69.9 2.66 0.42%
2007 Male 341 68.8 3.31 0.48%
Female 254 72.1 2.1 0.38%
Combined 595 70.2 2.66 0.43%
2006 Male 294 69.5 2.94 0.43%
Female 239 71.7 2.05 0.37%
Combined 533 70.5 2.46 0.40%
2005 Male 273 70.1 2.8 0.41%
Female 226 71.2 1.94 0.36%
Combined 499 70.6 2.31 0.38%
2004 Male 273 68.5 2.88 0.40%
Female 234 71.1 2.1 0.36%
Combined 507 69.7 2.44 0.38%
2003 Male 275 67.9 2.92 0.40%
Female 255 70.8 2.3 0.40%
Combined 530 69.3 2.6 0.40%
2002 Male 294 69.7 3.25 0.43%
Female 207 70.5 1.92 0.32%
Combined 501 70 2.51 0.37%
2001 Male 280 69.4 3.26 0.42%
Female 191 71 1.8 0.31%
Combined 471 70 2.43 0.37%
2000 Male 253 69.2 3.06 0.38%
Female 204 72.8 1.95 0.33%
Combined 457 70.8 2.43 0.36%
1999 Male 251 68.7 3.04 0.37%
Female 184 70.4 1.83 0.30%
Combined 435 69.4 2.35 0.34%
1998 Male 231 69.1 2.92 0.34%
Female 200 72.1 2.02 0.33%
Combined 431 70.5 2.42 0.34%
1997 Male 175 67.3 2.23 0.26%
Female 192 69.9 2 0.31%
Combined 367 68.7 2.09 0.28%
1996 Male 238 68.3 3.2 0.35%
Female 147 70.8 1.56 0.24%
Combined 385 69.2 2.26 0.30%
1995 Male 236 67 3.15 0.36%
Female 184 70.7 2.01 0.31%
Combined 420 68.6 2.52 0.34%
1994 Male 231 67.5 3.2 0.34%
Female 171 70.8 1.89 0.29%
Combined 401 68.9 2.46 0.32%
1993 Male 216 68.6 3 0.33%
Female 163 70.3 1.85 0.29%
Combined 379 69.4 2.34 0.31%
1992 Male 199 67.9 2.94 0.30%
Female 168 72.3 1.94 0.29%
Combined 367 69.9 2.38 0.30%
1991 Male 170 68.3 2.58 0.26%
Female 149 69.1 1.75 0.27%
Combined 319 68.7 2.07 0.27%
1990 Male 207 67 3.05 0.32%
Female 137 68 1.68 0.25%
Combined 344 67.4 2.28 0.29%
1989 Male 194 66.6 3.09 0.29%
Female 168 69.1 2.1 0.29%
Combined 362 67.7 2.51 0.29%
1988 Male 201 67.6 3.24 0.31%
Female 124 67 1.59 0.23%
Combined 325 67.4 2.29 0.27%
1987 Male 154 66.8 2.48 0.24%
Female 151 67.7 1.94 0.28%
Combined 305 67.3 2.15 0.26%
1986 Male 134 66.2 2.25 0.22%
Female 134 69.9 1.76 0.25%
Combined 269 68 1.96 0.23%
1985 Male 174 64.4 2.86 0.27%
Female 131 69.4 1.77 0.24%
Combined 305 66.6 2.26 0.26%
1984 Male 132 64.5 2.28 0.22%
Female 106 68 1.51 0.21%
Combined 238 66.1 1.85 0.22%
1983 Male 137 65.1 2.39 0.23%
Female 114 68.6 1.59 0.23%
Combined 251 66.7 1.94 0.23%
1982 Male 131 64.9 2.38 0.21%
Female 129 68.3 1.85 0.25%
Combined 260 66.6 2.07 0.23%
1981 Male 122 63.8 2.21 0.20%
Female 104 69 1.55 0.22%
Combined 226 66.2 1.86 0.21%
1980 Male 144 66 2.72 0.24%
Female 99 65.7 1.49 0.21%
Combined 243 65.9 2.01 0.22%
1979 Male 121 66.2 2.32 0.20%
Female 80 66.2 1.24 0.17%
Combined 201 66.2 1.7 0.19%


 

MND as an associated cause of death

The following table shows the Australian mortality rates for MND as the associated cause of death and the total number of deaths of people with MND. Associated causes are defined by the AIHW as other diseases or conditions that contributed to the death but which were not recorded as the underlying cause. 

Data on underlying causes of death up to and including 2005 are from the Australian Institute of Health and Welfare (AIHW) 2006. GRIM (General Record of Incidence of Mortality) Books. AIHW: Canberra.

Data on underlying causes of death from 2006–2018 are from the Analysis of Australian Institute of Health and Welfare National Mortality Database.

All data on associated causes of death are from the Analysis of Australian Institute of Health and Welfare National Mortality Database.   

Note: The mortality data in the AIHW National Mortality Database were provided by the Registries of Births, Deaths and Marriages, the Australian Bureau of Statistics (ABS) and the National Coroners Information System.

 

  Deaths with MND as underlying cause Deaths with MND as associated cause Total deaths of all people with MND* Percent of all causes of death with MND as either underlying or associated cause
2018 692 63 755 0.48%
2017 656 76 732 0.46%
2016 717 74 790 0.50%
2015 688 71 759 0.47%
2014 600 80 680 0.44%
2013 711 76 787 0.53%
2012 678 117 795 0.54%
2011 677 113 790 0.54%
2010 648 113 761 0.53%
2009 599 138 737 0.52%
2008 611 129 740 0.51%
2007 595 110 705 0.51%
2006 533 130 663 0.50%
2005 449 110 609 0.52%
2004 507 116 623 0.47%
2003 530 115 645 0.49%
2002 501 108 609 0.45%
2001 471 121 592 0.47%

*All MND deaths is the sum of deaths listed with MND as an underlying cause or as an associated cause. 

Prevalence of MND in Australia
To annually update the prevalence and number of Australians living with MND is diffcult. MND is not a notifiable disease so the numbers of those living with MND in Australia are estimates only. 

In 2015, a Deloitte Access Economics report, commissioned by MND Australia, estimated there were 2,094 Australians living with MND. Sixty per cent of those were male and 40 per cent female. The highest prevalence rate was reported in males aged between 75 and 84. The prevalence was estimated to be 8.7 per 100,000 Australians, or 1 in 11,434 Australians.

If the Deloitte figure of 8.7 per 100,000 Australians is applied to 2018 preliminary population figures, we can estimate that there are currently 2,174 Australians living with MND.

On 30 June 2019, the state MND associations were supporting 1,562 people living with MND across Australia.

Economic analysis of Motor Neurone Disease in Australia. Deloitte Access Economics

tags: 
information, research
*Comparability factor
Incidence is the number of new cases of MND each year.
Prevalence is the number of people who are living with MND.

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