The State MND Associations provide individualised support to people living with motor neurone disease (MND). Together with MND Australia, the state MND associations work as a network to promote best practice in MND care, and encourage and promote equitable state-based services to help people with MND and their carers live better.
The State MND Associations provide a range of services that may include all or some of the following:
- Information
- Ongoing support
- Home visits
- Assistance in accessing MND Clinics, local services, NDIS plans and aged care packages
- Coordination of NDIS supports
- Equipment or assistance in accessing equipment from government agencies
- Peer support and education programs
- Carer workshops and programs
- Support groups
- Education sessions and information for health and community care providers
- Advocacy and influencing
- Volunteers
During 2017/18 State MND Association support services provided:
- care, information and support to over 2,000 people living with MND
- support and information for over 865 people newly diagnosed with MND
- support for the families of the 560 people registered with an MND association who died
- over 5,512 items of equipment provided to people living with MND
- 4,464 home visits and over 31,000 contacts electronically
- education to over 2,000 health, disability and aged care providers
