If a family member or friend has been recently diagnosed with motor neurone disease (MND) you may be wondering where to turn for information and support. MND Australia and the state MND associations
have the resources and expertise to help family and friends care for their loved one.
Recently diagnosed – where to start
What to read
MND Australia's downloadable information resources
- Facts about MND
- Factsheets on living better for longer
- Information for families and young people
Who to talk with
Your state MND association
team can answer questions, and help you seek support and information based on your loved one’s needs. Some states host information sessions for people recently diagnosed with MND, and their family and friends. Check our calendar
and state MND association event pages to find out what's on.
You can also contact MND Australia
, or call our national freecall number 1800 777 175
to talk to someone from your state association team.
As your loved one’s needs change, you may be interested in seeking information on how you can help to maintain their quality of life. Our section on Living better
outlines some of the most common MND symptoms and provides tips to empower both the person with MND and carer. This information can also be downloaded
If you would like to meet other people who are touched by MND, take a look at the events pages on state MND association
websites. You’ll find MND association activities that support carers, raise awareness, raise dollars and pay tribute to those who are living with MND.