9th National MND Australia Conference on care 2018

MND CARE - Informing, Influencing, Innovating

The 9th National Motor Neurone Disease (MND) Australia Conference will be hosted by the MND Association of South Australia on Friday 31 August 2018 at the Grand Chancellor Hotel, Adelaide.

Background

On Tuesday 21 June 2005 the first National MND Conference was held in Melbourne. Over the next few years the National MND Conference was held annually to coincide with Global MND Day. In 2012 a new model was developed to host a biennial National Conference to alternate with the National Palliative Care Conference. 

The aim of the Conference is to promote sharing of expertise and understanding of MND nationally to improve care and support for people living with MND, their carers and family.

It provides an opportunity to promote evidence based and best practice care and to encourage collaboration, coordination and research. 

Who should attend?

  • Allied health professionals
  • Case managers
  • Community aged care providers
  • Community disability providers 
  • General practitioners
  • Government representatives
  • Local Area Coordinators 
  • Medical specialists
  • NDIA staff
  • Nurses
  • Palliative care staff
  • Residential aged care staff
  • Personal care workers
  • People living with MND
  • Support coordinators 
 

Conference Themes

Informing, Influencing, Innovating

Informing   

  • Translating advances in knowledge and clinical care into practice 
  • Models of support for people with MND
  • Carer Support
  • Maintaining independence and quality of life
  • Improving well being 

Influencing       

  • Working to influence best practice in a changing service sector environment
  • Cross sector models of care to narrow the disability, aged, healthcare divide
  • Facilitating the transition to the NDIS  
  • Collaborative approaches to improve care and support
  • Advance care planning and end of life care

Innovating   

  • Innovations in technology to support communication and independence 
  • Innovative approaches to supporting people living with MND and their families
  • Using technology to provide MND education and information
  • Developing a smart home  

     

Keynote speakers

A personal perspective on living with MND - TBC

Until there is a cure, there is care - Professor Samar Aoun 

Professor Samar AounProfessor Samar Aoun is a palliative care researcher with a public health approach and a focus on under-served population groups such as people with Motor Neurone Disease, Dementia, terminally ill people who live alone and family caregivers before and after bereavement. Samar advocates strongly for a person-centred health and social care. Her work on supporting family caregivers at end of life and the public health approach to bereavement care has informed policy and practice at the national and international levels. Samar is currently the Vice-President of the MND Association in WA and Director on MND Australia Board. She was awarded the Eleanor Mounsher Medal in recognition of outstanding commitment, dedication and service to people living with MND and their families.

 

Advances in care – Dr Susan Mathers

Dr Susan MathersDr Susan Mathers is a Consultant Neurologist at Monash Medical Centre, and the Clinical Director of Neurology at Calvary Health Care Bethlehem, Melbourne, which provides neuro-rehabilitative and neuro-palliative services to people with progressive neurological diseases including over 200 people with Motor Neurone Disease. She is a member of the Motor Neurone Disease Research Institute of Australia, the MND Research Tissue Bank and a founding member of the Australian MND Register. Her main interests are in the management of chronic progressive neurological diseases and models of care. She has participated in a number of government sponsored collaborative projects in this area and is currently involved in a project to implement a state-wide integrated care service for people with progressive neurological diseases in Victoria.

Advances in research – Dr Shyuan Ngo​

Shyuan Ngo

After obtaining her PhD in Neuroscience in 2009, Dr Shyuan Ngo undertook her first postdoctoral training position with Prof Pamela McCombe and Dr Robert Henderson. In 2012, she was awarded a Motor Neurone Disease Research Institute of Australia Bill Gole Fellowship to conduct research in a niche area, which focuses on metabolic imbalance in MND. Dr Ngo has presented her research at a number of national and international meetings, and regularly communicates her research outcomes to the wider community. 

 

Pre Conference Networking Event

Thursday 30 August, 2018 5pm – 7pm
Hotel Grand Chancellor Adelaide on Hindley 


Conference Day

Friday 31 August, 2018 8.30am – 5pm

Hotel Grand Chancellor
Hindley Street
Adelaide, South Australia

COst

$195 (GST inclusive) to include Conference Day and Pre Conference Networking Event


Registration

Registration is now open online.

​Payment may be made by credit card, cheque or direct deposit. Group registration is available if you would like to register four or more delegates.  

Call for Abstracts now open

Abstracts for poster and platform presentations to be submitted online here. 

Abstract submissions close Friday 4 May


 

Accommodation 

If you are planning on staying in Adelaide to attend the conference rooms are available at the Grand Chancellor at conference rates. 

Reservations to be made directly through Hotel Grand Chancellor Adelaide on Hindley  

Include the conference Group Code 377345 to receive the conference rates as follows: 

Executive/twin room - $155 per night 
Buffet breakfast - $15 per person per day 

There are a limited number of accessible rooms available - please book as soon as possible. 

Please note the following cancellation policy for bookings using the Group Code: 

1. Up to 14 days prior to the arrival date any cancellations made in writing to the hotel will not incur a cancellation fee 
2. Between 14 and 1 days prior to arrival any cancellation - you will incur a cancellation fee equal to 1 nights fee per cancelled room 
3. Cancellations or no- shows on the day of arrival - you will be fully charged for all room nights booked 


Download the 8th National MND Conference presentations - 2016 

 

Related links

 

Proud member of:

International Alliance of ALS/MND Associations

ACNC Registered Charity

 

MND Australia would like to advise Aboriginal and Torres Strait Islander users that this website may contain images or names of deceased persons.