Information resources

The following information resources are a good starting point:

Find answers to care issues in our series of facts sheets exploring interventions that research has shown to help people live better for longer with MND:

The following resources provide proven, evidence-based information to help Australian health and community care professionals promote optimal care outcomes for people living with MND:

MNDcare: The MND Australia website for health and community care professionals involved in MND care and support.

MND Aware training modules: A self-paced, e-learning program developed by MND NSW, which provides health and community care profesessionals with a basic understanding of MND and the impact of MND on an individual's life.

Aspects of care for the primary health care team 2017: A detailed clinical guide for GPs and the primary healthcare team who are supporting people living with MND and their families. Printed copies are available from your State MND Association. (40 pages) (1.2 MB)

Aspects of care for staff of residential aged care facilities: A booklet produced by MND NSW for residential aged care staff, which will assist them to meet the needs of residents living with MND (74 pages) (1.973 MB)

Aspects of care: community care: A booklet produced by MND NSW for community care providers and case managers, which provided information on providing MND care in a community setting (78 pages) (2.1 MB)

This extensive information pack will help parents to talk about MND with their children.  The series includes booklets for:

Walking, gardening, stretches and other kinds of physical activity can help when living with MND, even as the disease makes bodily movement harder. However, it's important to talk first with a health professional before trying physical activity with MND.

The fact sheet and plain language resource below explain why physical activity can help with the MND, what activities may be appropriate, the role of fatigue and other information to help readers make an informed decision about the potential benefits and limitations of physical activity with the disease.

Physical Activity and MND Fact Sheet

Physical Activity and MND Plain Language Resource

• High resolution (1.2 MB)
• Low resolution ( 203 KB)

Kennedy’s Disease is rare and often mistaken for motor neurone disease (MND). The Kennedy's Disease fact sheet can help you learn more about its causes and symptoms, ways it can be managed, differences with MND, who it affects, and sources of support: