MND Australia - Information resources for people touched by MND

Information resources

Our practical, up-to-date information resources explain motor neurone disease (MND) and empower people impacted by the disease to make decisions to help them live better for longer.

Prefer paper? Contact your state MND association if you would like paper copies of any of the following brochures.

Facts about MND

The following information resources are a good starting point:

Some facts about MND :Leaflet with brief answers to questions people usually ask about MND (2 pages) (391 kB)

More facts about MND (344 kB)

MND background information sheet 2018 (229 kB)

Living better for longer

Find answers to care issues in our series of facts sheets exploring interventions that research has shown to help people live better for longer with MND:

MND evidence-based interventions – an overview (EB1) :A summary of the "Living better for longer" series of fact sheets (2 pages) (208 kB)

Multidisciplinary care (EB2) :An overview of the benefits of multidisciplinary care and how to get it (2 pages) (167 kB)

Multidisciplinary care team (EB3) :Describing the health care professionals who typically make up a multidisciplinary care team (2 pages) (167 kB)

Riluzole (EB4) :About the medication riluzole, how it works and results from research trials (2 pages) (140 kB)

Breathing and motor neurone disease: an introduction (EB5) :An overview of how respiratory muscles work and the importance of a 'baseline measurement' (2 pages) (202 kB)

Breathing and motor neurone disease: what you can do (EB6) :Tips to help you manage respiratory symptoms and stay more comfortable (2 pages) (164 kB)

Breathing and motor neurone disease: medication and non-invasive ventilation (EB7) :An overview of using non-invasive ventilation and medications to manage breathlessness (2 pages) (196 kB)

Considering gastrostomy – PEG and RIG (EB8) :Information about gastrostomy as a way to improve nutrition (2 pages) (207 kB)

For healthcare professionals and service providers

The following resources provide proven, evidence-based information to help Australian health and community care professionals promote optimal care outcomes for people living with MND:

MNDcare: The MND Australia website for health and community care professionals involved in MND care and support.

Aspects of care for the primary health care team 2017: A detailed clinical guide for GPs and the primary healthcare team who are supporting people living with MND and their families. Printed copies are available from your State MND Association. (40 pages) (1.2 MB)

Aspects of care for staff of residential aged care facilities: A booklet produced by MND NSW for residential aged care staff, which will assist them to meet the needs of residents living with MND (74 pages) (1.973 MB)

Aspects of care: community care: A booklet produced by MND NSW for community care providers and case managers, which provided information on providing MND care in a community setting (78 pages) (2.1 MB)

For families and young people

This extensive information pack will help parents to talk about MND with their children. The series includes booklets for:

Parents :This document outlines how to keep communication with children strong (20 pages) (317 kB)

8-12 year olds :(8 pages) (217 kB)

Teenagers :(20 pages) (318 kB)

Young friends :(8 pages) (180 kB)

Schools :(12 pages) (241 kB)

Familial MND

Familial MND and genetic testing (147 kB)

Cognitive and behaviour change

Cognitive and behaviour change in MND (168 kB)

Planning ahead