ALS/MND Global Day 2017

Every year the International Alliance of ALS/MND Associations marks 21 June as the global day of recognition of ALS/MND – a disease that affects over 400,000 of the world's population, and kills over 100,000 people every year.

Alt-Teal-Beer-Cheers-Large-CheersChallenge2017.pngCheers Challenge

In any language, raising a glass and saying “cheers” is an expression of goodwill and camaraderie. 

On Global Day 2017, the International Alliance of ALS/MND Associations will say “cheers” to celebrate our friendships and show appreciation for our companions and colleagues in the global fight against ALS/MND.

Raise your glass and make a toast to another Alliance member association, researcher, colleague, person living with ALS/MND, carer, etc. Celebrate the Alliance’s supporters, friendship and collaborative efforts. We are working together for a world free of ALS/MND!

Share your “cheers” photo on social media using the hashtag #ALSMNDWithoutBorders. Use your “cheers” message to raise awareness of ALS/MND and to highlight the partnerships built by the Alliance community. Then challenge others in our community to post their own “cheers” photo!


Find out more about making your own special toast on 21st June!


 

Call on politicians to support MND care and research

MND Australia has written a National Action Framework including five commitments to improve the lives of people living with MND.
 
Contact your local parliamentarians/candidates and send them the MND Australia's National Action Framework ​along with your personal message about why they should support MND care and research. Share the framework via social media. 

National Action FrameworkSome ideas to get you started:

Do you care about people living with MND? We seek commitment from you as Local Candidate for [insert your Federal Seat] to improve the lives of people living with MND and their families. Please support the MND Australia  National Action Framework and empower people living with MND http://www.mndaust.asn.au/Documents/MND-Australia-Action-Framework.aspx

I support MND Australia’s National Action Framework and call for politicians on all sides to make five commitments on behalf of people living with MND and their families: https://www.mndaust.asn.au/Influencing-policy/Government-update.aspx  #MNDaction
1.    Increased investment in research
2.    Development of National MND Guidelines
3.    Improvements to aged and disability care
4.    Timely access to a full range of assistive technology
5.    A specific commitment to fund specialist MND multidisciplinary clinic coordinators

@yourLocalMember pledge your Five Commitments to people living with MND #MNDaction #auspol @mndaustralia
 

Related links

 

Proud member of:

International Alliance of ALS/MND Associations

ACNC Registered Charity

 

MND Australia would like to advise Aboriginal and Torres Strait Islander users that this website may contain images or names of deceased persons.