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What are top up scholarships for PhDs and how do they help MND scientists early in their career? We spoke with Natalie Grima and Anna Ridgers, the 2021 recipients of the MNDRA PhD Top Up Scholarship grants, and past recipients, about how they felt conducting research during the financial challenges of COVID-19, and what having more funding means to them as they work to try and stop MND.
Discussions about care at end of life can help make sure the wishes and needs of people living with MND are respected, and for having peace of mind. Our new guide provides friendly and practical information about what may help with discussions, services and support available, and what else to consider while planning ahead.

Podcasts can draw listeners deep into someone's story, helping others to better understand their passions and experiences, including people living with MND. Like our blog on MND videos, the team here at MND Australia team have begun collecting podcasts about MND. We hope the collection will help share more insights into MND research, what helps health professionals and others providing support for MND, and the stories of people...

Scientists have found that sleep can provide relief and improve quality of life for people living with MND. Talking to a healthcare team, regular respiratory assessments, using aids and equipment and finding ways to relax and spend time with friends are important to think about when managing sleep and MND.
People who donate to MND research and support are vital for helping scientists to better understand the disease, and how it could be stopped. But what drives someone to become a MND donor? And what keeps them donating? We spoke with Tarnia and Katrina Flett and Bec Lanin, who've donated to MND for several years, about what motivates them to be an important part of the MND community.
We live in the age of online video streaming, and MND videos are no exception. To help make finding MND videos online easier, staff at MND Australia have begun collecting them, including videos about MND signs and symptoms, stories of people living with MND, voice banking and other technology and what researchers have discovered about genetics and MND.
Carol Birks, CEO of MND Australia, has spent over 20 years working to improve the lives of people living with MND, with much of her work focused on advocacy. Carol recently reflected on what she's learned from working with key decision makers and the MND community, including how advocacy can best improve aged care for older people with MND, and why everyone must work together.
People living with MND and their carers are important participants in research about this cruel disease. Professor Samar Aoun, a palliative care expert from the Perron Institute and La Trobe University, explained to us why a life limiting disease like MND doesn't stop people wanting to participate in reseach, and its many benefits.
People who participated in the Australia Moves for MND (AM4MND) campaign showed they could raise money for MND care, support and research during the pandemic, safely, and while doing things they enjoyed.
Platform trials are an innovative new approach to running MND clinical trials that can speed up the process of developing new treatments for MND.
Scientific research into motor neurone disease (MND) helps us to better understand and find potential therapies for the disease. But how are MND researchers continuing their work with the challenges and restrictions of COVID-19?

Isabella Lambert-Smith, from the University of Wollongong, shares her experience working in MND research during the pandemic.
The COVID-19 pandemic has seen everyone in Australia adapt to a new ‘socially-distanced’ normal. People living with MND already have extra challenges in their life, and now the pandemic has added another dimension to those challenges. To find out what life is like for someone with MND at this time, MND Australia spoke with Graham Johnson from South Australia, who has been living with MND since 2019.
Did you know that you can talk with your doctor using text, voice or video online from the comfort of home? Or that affordable online consultations with an MND specialist are available through the NDIS or Medicare?

Telehealth is a way of accessing medical care through phones, the internet and other sorts of information technology. In recent years, telehealth has become an important option for when a face-to-face consultation with a doctor is difficult, and especially now with the impact of the COVID-19 pandemic.
Dr Kelly Williams leads the Genomics & Bioinformatics research team in the Macquarie University Centre for MND Research. Isabella Lambert-Smith is completing the final stages of her PhD, in which she studied protein homeostasis dysfunction in MND at the Illawarra Health and Medical Research Institute, University of Wollongong.

We asked Lambert-Smith and Dr Williams about what International Women's Day means to them, including who they admire and what might help more women to get involved in researching ways of...
At MND Research Australia we have many wonderful people raise funds or donate to MND research, but one of our most committed and creative fundraisers is a lovely woman called Heather Harris from Googong, NSW.
The microbiome has become an important topic of research for scientists because of its links to human health. Dr Derik Steyn, from the University of Queensland, explains what the study of the microbiome means for MND.
Every year, close to 1,000 leading MND researchers and clinicians from around the world meet in one location for the International Symposum on ALS/MND. The Symposium facilitiates a global meeting of ideas and inspires new collaborations and pathways that help us to further understand MND and develop potential treatments.
Dr Shyuan Ngo, from the University of Queensland, is the MNDRA 2020 Betty Laidlaw MND Research Prize winner. The $250,000 grant awards an 'outstanding mid-career researcher with an innovative project to advance the understanding of MND with a clear potential for effective treatments'.

We chat with Shyuan about why she chose MND research and how she hopes to one day find a cure for MND.
Kaitlin Ellis, one of the founding members of the MND Genies, and her sister Jessica, recently joined MND Australia and MND NSW at Parliament House in Canberra to speak with federal politicians about improving the lives of people dealing with familial MND.
Are there links between sport and MND? Should we be concerned about playing some of the world’s most beloved games?
In September 2019, MND experts and neurologists from around the world met in the Gold Coast to discuss ways to help improve early diagnosis of ALS/MND.

Read all about the outcomes of the meeting in our latest blog post.

Recently, researchers created the MND Patient Decision Support Tools, a collection of online information modules about assisted ventilation, gastrostomy, genetic testing and similar options for care. The tools assist people living with MND to make discussions about how they’d like to deal with the disease.

MND Australia would like to offer its sincere condolences to the Laidlaw family after the recent passing of generous donor and supporter of MND research, John Laidlaw.

Since 2015, John has funded the Betty Laidlaw MND Research Grant and the Betty Laidlaw Research Prize, a magnificent total contribution of $2,000,000. The grant and subsequent prizes awarded have been critical for funding research into finding potential treatments and better understanding the causes of MND.

After 15 years of working tirelessly to promote research into motor neurone disease (MND), Janet Nash has retired from the Motor Neurone Disease Research Institute of Australia (MNDRIA) – the research arm of MND Australia.

We had a chat with Janet about the growth and changes at MNDRIA during those years.
Five years ago the Ice Bucket Challenge swept the world and changed the landscape for MND awareness and research funding.

Jimmy Ashby, a 20 year-old and from Adelaide, rode his bicycle around the world, raising almost $33,000 for MND Australia. We spoke with Jimmy...

The MND Research Institute of Australia offers grants to attract and develop outstanding researchers at all stages of their careers. Grants range from PhD top-up grants (applications for 2019 close 31 January) to multi-year project grants when special funds are available.

Take a look at the development of researchers funded by MNDRIA at the University of Tasmania in recent years. 
Associate Professor Peter Crouch talks about the results of the phase 1 clinical trial exploring copper-ATSM as a potential treatment for MND
We talk to Jo Fowler, an MND Adviser in NSW, about what her role involves and how she is helping those living with MND, their families and carers. 
Some interesting new research on potential risk factors for ALS/MND has just been published by the team who operates the ALS Quest research questionnaire at the University of Sydney. Find out more
This week we take a look at Ms Sheer's clinical trial investigating whether specialised breathing exercises everyday slows the decline in breathing function. 
Preserving special moments with your family and friends can be a wonderful way to communicate a loving message, stories or celebrate a life well lived. Here are a few ideas.
Drs Kevin Barnham, Tony White and Paul Donnelly were working on Alzheimer's and Parkinson's disease when they had an opportunity to test copper-ATSM in an MND mouse. 
Dr Marco Morsch and his team have established a novel technique to visualise the fate of MND proteins in neurones before and after they die. 
Associate Professor Kenneth Rodgers and colleagues investigate ways in which chemicals released from blue-green algae could affect neurones. 

Dr Anne Hogden and her team are developing decision-making tools to help people living with MND make decisions about their care.
We take a look at how the money raised from the Ice Bucket Challenge in 2014 enabled the MND Research Institute of Australia (MNDRIA) to fund one of Australia's leading MND research projects. 
Join us as we take a look at some of the milestone research projects that have been funded through the MND Research Institute of Australia. 
Louise tells the story of her mother's rapid progression with MND.
On the International Day of Families we celebrate the love, commitment and bravery of families impacted by MND.
Posted 15/05/2017 at 12:45PM by MND Australia

Bill Gole MND Postdoctoral Fellow, Dr Jennifer Fifita is spurred on by eureka moments of gene discovery. 

Posted 15/05/2017 at 12:45PM by MND Australia

Meet Trevor Newby who continues to enjoy the sea breeze thanks to the assistance of his State MND Association.


Posted 15/05/2017 at 12:45PM by MND Australia

"I had a wonderful life before motor neurone disease and I have a wonderful life now," says Kirsten Harley.
Sometimes grumpy and eccentric, always generous. A loving daughter writes a touching tribute to her Dad.
Posted 8/11/2016 at 12:45PM by MND Australia

Sally Light (CEO, MND Association) and Carol Birks (CEO, MND Australia) discuss MND care, research and working together to improve the lives of people with MND. 
Posted 13/10/2016 at 8:45PM by Sue Needham

Just being there for someone who knows the end of life is imminent is a special role. My experience as carer for my husband crept up for many years before the diagnosis of MND was confirmed. 
Posted 25/09/2016 at 8:45PM by Drew Bathgate

Drew tells why he and his wife, Maureen love Busselton in WA and shares some tips to make holidaying easier.
Posted 1/09/2016 09:00AM by Karen Andrews

"​We’d known something was wrong with dad for a while ..."
Posted 8/08/2016 at 2:38:00PM by Pamela Bartlett

"I really never appreciated when I first started this position just over 1.5 years ago how important the psychological aspect of care is in relation to MND."  
Posted 20/07/2016 at 2:38:00PM by Belinda Robinson

Belinda Robinson shares her love and admiration for her hero father who lost his battle with motor neurone disease in April 2016. 
Posted 5/07/2016 at 1:52:00AM by Trevor Newby

"(MND) put pressure on my relationship to the point of my partner leaving after 4 years & eventually I was deemed homeless until a disability pension was processed & approved 4 months later."
Posted on 8/06/2016 at 4:00PM by Denise Plunkett

MND Queensland's Denise Plunkett writes about her personal journey with MND after losing her brother to the disease then helping others through her work as MND Client Service Advisor.
Posted 14/06/2016 at 6:52:00AM by Phil Brady

Phil Brady was diagnosed with motor neurone disease over 20 years ago. His experience with the aged care system has been less than ideal and here he describes the inadequacies of the system from his point of view.
Posted 27/05/2016 at 12:25:00PM by Julie Craig-Smith

Julie Craig-Smith, Education and Support Coordinator at the MND Association of Western Australia talks about their popular carer education and support program You, Me & MND.
Posted 13/05/2016 at 8:25:00PM by Anita Richter

It's National Volunteer Week and we'd like to give a huge shout out to all the volunteers who generously give their time to improve the lives of people touched by MND. With almost 20 years of experience in the MND community, Anita Richter is a most valued volunteer. Read Anita's story about why she "never wants to give up" supporting people impacted by MND.
Posted 7/05/2016 9:00:00AM by Guy Barnett

As MND Week comes to a close, Tasmanian MP and MND Ambassador, Guy Barnett encourages us to continue raising awareness and advocate for people living with MND. 
Posted 5/05/2016 at 9:00:00AM by Shyuan Ngo

Research scientist, Shyuan Ngo talks about MND research and her drive to better understand what causes motor neurone disease.
Posted 6/05/2016 at 9:00:00AM by Sarah Solomon

Occupational Therapist, Sarah Solomon shares what she loves about working with people who are living with MND.

​Posted 4/05/2016 09:00:00AM by Anne Hogden

Dr Anne Hogden shares her perspective on improving healthcare services for people living with motor neurone disease.   
Posted 3/05/2016 1:00:00PM by Jackie Chugg

Jackie was just 25 years old when she was diagnosed with motor neurone disease. Here she tells her story about living a positive life.
Posted 3/05/2016 09:00:00AM by Amy Critchley

A daughter describes how her world was turned upside down the day her Mum’s MND diagnosis was confirmed. 
Posted 2/05/2016 9:00:00AM by William Huynh

"Delivering the diagnosis of MND never gets easier," Dr William Huynh describes his role as Consultant Neurologist at the Forefront Clinic, Brain and Mind Centre, Sydney.
Posted 1/05/2016 12:00:00PM by Kirsten Harley

"Each of the 2094 Australians living with MND has a story about the personal impact of MND. I'm Kirsten and my story starts 4 years ago..."
Posted: 30/04/2016 7:30:00PM by Carol Birks 

In this short video National Executive Director of MND Australia, Carol Birks introduces MND Week, 1–7 May 2016 and our social media campaign #7DayswithMND.

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