Get involved > Spotlight on MND > July 2016 > Getting by with support from family and friends

Spotlight on MND


Getting by with support from family and friends

"I was diagnosed in June 2014 with MND & since then life has changed very quickly for me. I had been working for Surfing WA as a Surf Instructor, coaching classes mostly every day before the disease started to weaken firstly my left arm, then my legs leaving me unable to swim, surf & finally instruct. This was confronting physically & mentally. It put pressure on my relationship to the point of my partner leaving after 4 years & eventually I was deemed homeless until a disability pension was processed & approved 4 months later. 

Motor Neurone Disease Association of WA has been excellent throughout this time by doing what they could with donations, help & supporting my needs. I have a team of doctors & social workers that I frequently visit should I require anything as my disease progresses. 

MND really does strip away all the things you love in life. Luckily I have good support from family & friends. My goal is to create MND awareness in the community with my 3 great passions ... surfing, music and rugby league." Trevor Newby, WA.


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