Mark had complained about a twitching in his upper arm. Then he couldn’t get the lid off the Milo tin. I told him to go to the doctor.
I remember that night when we all tried to come to grips with the devastating result.
I am a nurse. What can I do to stop this? I am his big sister. How can I make this go away?
The best thing we did was to get in touch with MND Queensland. The staff provided correct information and guided us through the maze called “Our Health System”.
Mark borrowed equipment that gave him some freedom and let us make memories that we hold in our hearts.
We lost Mark two years after diagnosis and just short of his 46
th birthday. I believe he left me to do what I do now – work for MND Queensland.
It only takes a phone call from someone struggling to speak for it all to come flooding back. I know that Mark would be happy that I now work with others travelling the same path as he did.
Denise Plunkett
MND Queensland
Denise's brother Mark.