Spotlight on MND


You, Me & MND

Posted 27/05/2016 at 12:25:00PM by Julie Craig-Smith

You, Me & MND is a carer education and support program run by the Motor Neurone Disease Association of Western Australia (MNDAWA). The program is designed to empower our carers with knowledge and confidence in caring for their loved one, whilst supporting them to maintain a strong emotional foundation in assisting to understand the changes taking place in their lives.   

A maximum of 12 carers in the group, allows the group to be intimate and feel safe to share their journey of MND. As Education & Support Coordinator I facilitate the course with two counsellors providing emotional support. 

There are five modules of the program which is run over five consecutive weeks.  The first half of each week is education and then emotional support. Emotional support plays a large role with the counsellors exploring what is emotional support and allowing the carers to explore this in a safe, confidential environment.

The five modules of You, Me & MND 

Week 1 – Introduction to MND and “Don’t forget you are important too.”
A past carer also attends and shares her personal experience as a carer and wife and the coping strategies she has found useful.  This past carer then also attends for the remaining weeks as a reference for our carers attending the course. A lot of our carers find it helpful talking with her one on one over lunch. 

Week 2 – The dietician, speech therapist and visiting respiratory nurse present information and the support they offer to our clients.

Week 3 – The Communication & Technology Services Team bring their suitcases of amazing ways they can assist clients in maintaining their independence. Some examples are communication devices to assist with speech such as Megabee, iPad, Litewriter, and special remotes to control lighting, television.

Week 4 – An occupational therapist demonstrates safe manual handling.  This is a practical session with carers learning safe lifting, moving and transferring techniques.

Week 5 –  Coping with changes taking place in your life.

The feedback we get about the program is so positive. A daughter attended our last course with her dad;

"I was so thankful to be given the opportunity to come to You Me & MND held at the Niche. It was so lovely to be able to have people to talk to and counsellors to listen to me and hear how I’m feeling and how I’m coping with my mother’s diagnosis and health at present. It was extremely beneficial for my dad who was not really aware of how best to help mum now and how to help mum with what may arise in the future.”

It is a privilege for us at MNDAWA, to share our clients and families journey with motor neurone disease. 

Julie Craig-Smith
Education and Support Coordinator
MND Association of Western Australia



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