News and media

Discover the latest news about motor neurone disease (MND) advocacy and research or visit our one-stop-shop for media, Media hub.

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Successful completion of phase II trial of arimoclomol in ALS patients with SOD1 mutation

| 13/12/2016

A phase II clinical trial led by Dr Michael Benatar from the University of Miami Miller School of Medicine has found a heat shock protein-based therapy shows potential for the treatment of ALS patients with mutations in the SOD1 gene.

Catch up on the latest MND research news in Australia and around th...
Catch up on the latest MND research news in Australia and around the world

| 12/12/2016

​It has been another extraordinary year for the Motor Neurone Disease Research Institute of Australia. Thirty-two grants worth $3.75 million have been awarded for research to start in 2017.

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Neuroscientist, Prof Perry Bartlett named Queensland Senior Australian of the Year 2017

| 24/11/2016

Professor Bartlett has had a long and distinguished career in neuroscience research and many years serving as a member of the MND Research Institute of Australia Research Committee

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The Lighthouse Project clincal trial is now recruiting

| 22/11/2016

The Lighthouse Project is a clinical trial to test whether MND is caused or triggered by human endogenous retroviruses (HERVs). The trial is now recruiting participants in NSW and Victoria.

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MND Australia annual review 2015–16 now online

| 31/10/2016

 It's been another busy year for the MND Australia team with main accomplishments including "The Fading Symphony", launch of the Deloitte Access Economics report "Economic analysis of MND in Australia", development of the MND 'red flags' diagnostic tool for GPs and MND Research Institute of Australia funding of a record 42 new research grants in 2016.

2017 Research Grants announced
2017 Research Grants announced

| 28/10/2016

​The MNDRIA Research Committee has awarded 32 new grants to commence in 2017.

Two new grants have been awarded this year.

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MND Research Institute of Australia allocates $3.75M to new research

| 25/10/2016

Thanks to the wonderful support from donors, bequestors and the State MND Associations, at last week's Grants Allocation Meeting the MND Research Institute of Australia allocated $3.75 million for research commencing in 2017.

Clinical Trial FAQs
Clinical Trial FAQs

| 14/10/2016

When it comes to understanding clinical trials, accessible information can be hard to come by. 

The media are currently focusing on two important motor neurone disease (MND) clinical trials, the Lighthouse Project and Copper-ATSM. 

The team at MND Australia has developed a series of easy-to-understand explanations of the trials and what the expected outcomes might mean for future MND treatments.  

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September issue of MND Australia newsletter

| 27/09/2016

Take a read to find out the latest about national advocacy, information, awareness and research activities that impact the MND community.

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Cognitive and behaviour change in MND

| 22/09/2016

September is Dementia Awareness Month. Did you know that up to 15% of people living with motor neurone disease will develop frontotemporal dementia or FTD? 



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