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Discover the latest news about motor neurone disease (MND) advocacy and research or visit our one-stop-shop for media, Media hub.

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Carol Birks | 17/03/2020

There is currently a notification on the Therapeutic Goods Administration (TGA) website stating that riluzole (a medication that may slow the progression of MND), has a shortage of supply in Australia.

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COVID-19 and MND

Morag Millington | 10/03/2020

We understand that many people living with MND and their carers, families and friends may be concerned about COVID-19 (coronavirus).

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Enhancing Communication for people with MND: 2-day workshop

Morag Millington | 28/02/2020

John Costello, SLP and Director of ALS Augmentative Communication Program at Boston Children’s Hospital, will be holding a two-day interactive workshop on enhancing communication for people with MND at UTS in Sydney on 5-6 March 2020.

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Supply of riluzole

Morag Millington | 18/02/2020

There is currently a notification on the Therapeutic Goods Administration (TGA) website stating that riluzole (a medication that may slow the progression of MND), has a shortage of supply in Australia.

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Vale Betty Laidlaw

Morag Millington | 5/02/2020

Sadly, Betty Laidlaw, who lived with MND for over 30 years and, together with her husband John Laidlaw, was a generous donor to MND research, has died.

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MNDRIA PhD top-up grant applications now open

Laura Birks | 9/12/2019

The MNDRIA PhD Scholarship Top-up Grant is awarded as an incentive to an outstanding PhD student. The grant will provide a $5,000 per annum stipend for a PhD candidate, for a maximum of three years and commencing in 2020.

Applications will be accepted from PhD students who have been awarded a full PhD scholarship for biomedical or public health research in motor neurone disease. The applicant must be an Australian citizen or Australian resident. The applicant has not received PhD top-up funding from other sources.

Click here to read more information about the top-up grants. 

Applications close on January 31, 2020. 

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30th International Symposium on ALS/MND begins in Perth next week

Morag Millington | 29/11/2019

The 30th International Symposium on ALS/MND and affiliated meetings begins in Perth next week. Over 1,000 world-leading researchers and health professionals, as well as people living with MND and the wider MND community, will meet to discuss the latest developments in MND research and care. All share a common goal to move us closer to finding effective treatments and ultimately a cure.

This is the first time this international event has been held in Australia since 2011 and is co-hosted by MND Australia and MND Western Australia.

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MND Australia awarded ILC grant

Morag Millington | 12/11/2019

MND Australia, along with our national-network of state MND associations, are pleased to announce that we have been awarded a $1.3 million Information, Linkages and Capacity Building (ILC): National Information Program grant, funded by the National Disability Insurance Agency.

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Royal Commission into Aged Care interim report released: "A shocking tale of neglect"

Morag Millington | 4/11/2019

The Royal Commission into Aged Care Quality and Safety’s Interim Report was released and tabled in the Australian Parliament on Thursday 31 October. The Commissioners’ investigation into Australia’s aged care system led them to describe it as “a shocking tale of neglect”.

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Copper-ATSM phase 2/3 clinical trial to begin

Morag Millington | 31/10/2019

A phase 2/3 clinical trial of copper-ATSM (CuATSM) for the treatment of motor neurone disease (MND) progression will soon begin in Australia.


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