News and media

| 16/10/2017

Through her role as Chairwoman of the International Alliance for ALS/MND, our CEO, Carol Birks, was privileged to experience different cultures’ approaches to MND care and support. With visits to Myanmar and Israel, the trips were a great opportunity to see the exciting progress in MND research and care internationally. Differences were underpinned by a common passion and commitment to improve the lives of people living with this devastating disease and their families.

| 13/10/2017

National Carers Week 2017 will run from 15 – 21 October and is an opportunity to appreciate and celebrate the invaluable contribution that Australia’s 2.7 million unpaid carers make every day. In Australia, the economic impact of informal care costs of people living MND totals $68.5 million - or $32,728 per person with MND. This financial strain highlights the serious reliance the system currently places on family carers to support people living with motor neurone disease. Carers make an enormous contribution to our communities and our nation and it is important that they are recognised.

| 9/10/2017

The latest issue of the MNDRIA newsletter features all the details for the upcoming MND Australia Research Conference, Investing in Innovation, Partnering for Progress, a look at the impact of the Ice Bucket Challenge three years on and features some of our dedicated fundraisers.

Read more
 

| 6/10/2017

Australia has six State MND Associations committed to providing the best care and support services for people impacted by MND. The Associations support the lives of Australians living with MND, and aim to help everyone live better for longer. We are thankful to all the hardworking members of staff and volunteers at the heart of each organisation. Click here to view the latest figures highlighting their important work over the last year.
 

| 14/09/2017

The September issue of the Update is now online featuring the latest MND research from across the globe. This issue features articles on TDP-43 clumping, interplay of FUS and SMN in gene splicing, repairing the blood-spinal cord barrier and a tool to address calcium imbalance in MND. 

| 21/08/2017

MND researchers as well as the broader MND community are invited to attend the 13th MND Australia Research Conference: Investing in Innovation, Partnering for Progress to be opened by Federal Assistant Minister for Health, the Hon Dr David Gillespie MP. The Conference will be held on Friday 10 November at the University of Sydney.

Join us to celebrate 30 years of accomplishment in Australian MND research, hear about the latest MNDRIA-funded research and contribute to a forum on a research roadmap for the future. Register now

| 21/08/2017

Tata Consultancy Services (TCS), a leading global IT organisation, today announced it will provide free IT and technology expertise to MND Australia and another 11 not-for-profit organisations in Australia.
 
TCS will assist MND Australia to develop technology solutions that enable easy access to information, for people living with MND who may find access to traditional information and networks difficult. Read media release

| 20/08/2017

The community is invited to this interactive forum connecting people impacted by MND with Australia's leading MND researchers.The 3rd MND Connect will be held at the University of Sydney on Saturday 11 November. Register now
 

| 29/06/2017

Global Day 2017 was a great success with people raising their glasses and raising awareness about ALS/MND. Read about the events that shaped the 21st June this year and the latest news from around Australia. 

| 23/06/2017

Updated edaravone frequently asked questions (FAQs) are now available for download.