News and media

Discover the latest news about motor neurone disease (MND) advocacy and research or visit our one-stop-shop for media, Media hub.

Got a story to share? Tell us about how MND has impacted your life.

News List

RSS Feed RSS Icon
Default news teaser image
MNDRIA newsletter, "Advance" – December 2017

| 19/12/2017

The latest issue of Advance is online featuring highlights from recent MND research events, an overview of The Lighthouse Project clinical trial and an interview with Drs Shyuan Ngo and Frederik Steyn. 

Study confirms role for NEK1 gene in Chinese people with MND
Study confirms role for NEK1 gene in Chinese people with MND

| 20/11/2017

An international research team has advanced our understanding of the genetic factors contributing to the risk of developing motor neurone disease (MND).

The research, partly supported by the MND Research Institute of Australia (MNDRIA), investigated the NEK1 gene in 610 Chinese people with MND compared to people without MND.

$25 Million, 25 Milestones: Changing the future of motor neurone di...
$25 Million, 25 Milestones: Changing the future of motor neurone disease.

| 16/11/2017

The MND Research Institute of Australia is proud to share its report, $25 Million, 25 Milestones: Changing the future of motor neurone disease. Launched at the 13th MND Australia Research Conference by the Assistant Minister for Health, the Honourable Dr David Gillespie MP, the report details 25 high-impact MNDRIA-funded advancements, which are helping to change the future of MND and bringing hope to people living with MND.

2018 Research Grants announced
2018 Research Grants announced

| 14/11/2017

The MND Research Institute of Australia has awarded more than $3.31 million for research to start in 2018. Following review of grant applications by the MNDRIA Research Committee, 28 new research projects will be supported next year.

Productivity Commission Review of NDIS Costs
Productivity Commission Review of NDIS Costs

| 19/10/2017

The Productivity Commission has released its report on National Disability Insurance Scheme (NDIS) costs. MND Australia welcomes the report, which has reflected concerns from organisations across the disability sector. MND Australia made a submission to the Productivity Commission, outlining our concerns about the current NDIS process, and suggestions for improvement, many of which have been noted in the report.

MND Without Borders: CEO visits Myanmar and Israel
MND Without Borders: CEO visits Myanmar and Israel

| 16/10/2017

Through her role as Chairwoman of the International Alliance for ALS/MND, our CEO, Carol Birks, was privileged to experience different cultures’ approaches to MND care and support. With visits to Myanmar and Israel, the trips were a great opportunity to see the exciting progress in MND research and care internationally. Differences were underpinned by a common passion and commitment to improve the lives of people living with this devastating disease and their families.

National Carers Week 2017
National Carers Week 2017

| 13/10/2017

National Carers Week 2017 will run from 15 – 21 October and is an opportunity to appreciate and celebrate the invaluable contribution that Australia’s 2.7 million unpaid carers make every day. In Australia, the economic impact of informal care costs of people living MND totals $68.5 million - or $32,728 per person with MND. This financial strain highlights the serious reliance the system currently places on family carers to support people living with motor neurone disease. Carers make an enormous contribution to our communities and our nation and it is important that they are recognised.

Default news teaser image
MNDRIA Newsletter October Issue

| 9/10/2017

The latest issue of the MNDRIA newsletter features all the details for the upcoming MND Australia Research Conference, Investing in Innovation, Partnering for Progress, a look at the impact of the Ice Bucket Challenge three years on and features some of our dedicated fundraisers.

Read more

Default news teaser image
State MND Associations: Facts and Figures 2017

| 6/10/2017

Australia has six State MND Associations committed to providing the best care and support services for people impacted by MND. The Associations support the lives of Australians living with MND, and aim to help everyone live better for longer. We are thankful to all the hardworking members of staff and volunteers at the heart of each organisation. Click here to view the latest figures highlighting their important work over the last year.

Default news teaser image
MND Australia International Research Update – new look, same great science

| 14/09/2017

The September issue of the Update is now online featuring the latest MND research from across the globe. This issue features articles on TDP-43 clumping, interplay of FUS and SMN in gene splicing, repairing the blood-spinal cord barrier and a tool to address calcium imbalance in MND. 


Proud member of:

International Alliance of ALS/MND Associations

ACNC Registered Charity


MND Australia would like to advise Aboriginal and Torres Strait Islander users that this website may contain images or names of deceased persons.