News and media

Discover the latest news about motor neurone disease (MND) advocacy and research or visit our one-stop-shop for media, Media hub.

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National Carers Week 2017
National Carers Week 2017

| 13/10/2017

National Carers Week 2017 will run from 15 – 21 October and is an opportunity to appreciate and celebrate the invaluable contribution that Australia’s 2.7 million unpaid carers make every day. In Australia, the economic impact of informal care costs of people living MND totals $68.5 million - or $32,728 per person with MND. This financial strain highlights the serious reliance the system currently places on family carers to support people living with motor neurone disease. Carers make an enormous contribution to our communities and our nation and it is important that they are recognised.

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MNDRIA Newsletter October Issue

| 9/10/2017

The latest issue of the MNDRIA newsletter features all the details for the upcoming MND Australia Research Conference, Investing in Innovation, Partnering for Progress, a look at the impact of the Ice Bucket Challenge three years on and features some of our dedicated fundraisers.

Read more

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State MND Associations: Facts and Figures 2017

| 6/10/2017

Australia has six State MND Associations committed to providing the best care and support services for people impacted by MND. The Associations support the lives of Australians living with MND, and aim to help everyone live better for longer. We are thankful to all the hardworking members of staff and volunteers at the heart of each organisation. Click here to view the latest figures highlighting their important work over the last year.

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MND Australia International Research Update – new look, same great science

| 14/09/2017

The September issue of the Update is now online featuring the latest MND research from across the globe. This issue features articles on TDP-43 clumping, interplay of FUS and SMN in gene splicing, repairing the blood-spinal cord barrier and a tool to address calcium imbalance in MND. 

13th MND Australia Research Conference
13th MND Australia Research Conference

| 21/08/2017

MND researchers as well as the broader MND community are invited to attend the 13th MND Australia Research Conference: Investing in Innovation, Partnering for Progress to be opened by Federal Assistant Minister for Health, the Hon Dr David Gillespie MP. The Conference will be held on Friday 10 November at the University of Sydney.

Join us to celebrate 30 years of accomplishment in Australian MND research, hear about the latest MNDRIA-funded research and contribute to a forum on a research roadmap for the future. Register now

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MND Australia receives grant to develop new MND app

| 21/08/2017

Tata Consultancy Services (TCS), a leading global IT organisation, today announced it will provide free IT and technology expertise to MND Australia and another 11 not-for-profit organisations in Australia.
TCS will assist MND Australia to develop technology solutions that enable easy access to information, for people living with MND who may find access to traditional information and networks difficult. Read media release

MND Connect 2017: Register now
MND Connect 2017: Register now

| 20/08/2017

The community is invited to this interactive forum connecting people impacted by MND with Australia's leading MND researchers.The 3rd MND Connect will be held at the University of Sydney on Saturday 11 November. Register now

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Global Day Newsletter out now

| 29/06/2017

Global Day 2017 was a great success with people raising their glasses and raising awareness about ALS/MND. Read about the events that shaped the 21st June this year and the latest news from around Australia. 

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Edaravone FAQs

| 23/06/2017

Updated edaravone frequently asked questions (FAQs) are now available for download.


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Your chance to have a say on NDIS costs

| 22/06/2017

A position paper outlining the Australian Productivity Commission's early thinking on the National Disability Insurance Scheme (NDIS) costs was released on 14 June 2017.  You are invited to examine the paper and write a submission or comment. 


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